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September 2024 

A Letter from the President

I hope this email finds you well!

Fall is a busy time at the LSI.  We have the Lupus Charity Runners team in the Bank of America Chicago Marathon coming up on October 13th, 2024.  This year, we have 36 team members who have signed up to run 26.2 miles to raise awareness and funds for lupus and the LSI.  Every year this team gets bigger and we are honored by so many runners who come out to run year after year.

If you are interested in volunteering at this year’s CHEER STATION on race day, we can definitely use your help.  It’s an early morning and a great day.  

Everyone who has come out has had a great time and been inspired by our runners.  If you’re interested in helping out, please contact Mary.

We’re also working with Governors State University on their Run, Walk and Roll event on October 27th.  This annual event will have a DJ, food trucks, kids activities – including face painting – and much more!  Best part is that LSI participants get  $10 off by using the lupussociety2024 discount code.  Funds raised go directly to the LSI! 

Our last live event of the year is the annual Rush Lupus Clinic & LSI Educational Event on December 7, 2024.   This event features three presentations and a panel discussion with the Rush Lupus Clinic Doctors.  And, like all of LSI’s events, this event is free and open to the public.  The event will open for registrations shortly.

It’s hard to believe another Lupus Walk season is behind us – we had luck with the weather at both of our events.  The Western Suburbs Lupus Walk on August 10th was a great success – bringing out over 300 participants.  The Chicago Lupus Walk & Fun Run on September 15th brought out hundreds  Our new location in Grant Park was a huge success.  If you were able to make it, we hope you had as good a time as we did!

This last week we hosted our Spanish Language Educational Event at Northwestern Medicine.  Thanks to everyone at Northwestern for making this event happen, Especially Dr. Irene Blanco, Dani Lieggi and Charon Gladfelter.  The presenters include Dr. Blanco,   Dr. Juan Carlos Caicedo and Dr. Luisa Safar Boueri.  The entire event can be viewed on our youtube account here: https://www.youtube.com/live/dBBXSV-iTiI?si=qLIDqpWWQjaFJber.

There are so many exciting events coming up before the end of the calendar year.  We hope we will see you at all of them!

Together we make a difference

Mary
 

 

Research Opportunity

This Activate study aims to engage and empower community leaders to share accurate and well guided messages about COVID-19 vaccines with their community members. 

For more information click here or contact mary@lupusil.org.

 

Congratulations to Dr. Jolly!

Congratulations to Dr. Meenakshi Jolly, Director of the Rush Lupus Clinic, for being endowed with the George W Stuppy Professorship for Arthritis. This honor recognizes her clinical, research and educational contributions in Lupus.

Well deserved!

Dr. Meenakshi Jolly

SPECIAL EVENTS

Flyer

Registration instructions

Governors State Annual Run Walk Roll
October 27, 2024

Join Team LSI for the Governors State Annual Run, Walk, Roll.  This fun, family-friendly event includes activities for kids, food trucks, sponsor tents, a DJ and much more!

Donations can be made to LSI through the event page.  You can register for the event and set up a fundraising page if you like.

GOOD NEWS!  Lupus participants get $10 off registration!  Be sure to use Discount Code: lupussociety2024!

Come for the walk stay for the fun!

EDUCATIONAL EVENTS

Save The Date!
Annual Rush Lupus Clinic & LSI Educational Event

Saturday, December 7, 2024!

 

Spanish Language Educational Event was a Huge Success!

On Saturday, September 21 the LSI partnered with Northwestern Medicine and Aurinia Pharmaceuticals for an educational event targeting lupus nephritis.  

The event brought out about 30 participants and featured presentations by leading experts: Irene Blanco, MD (rheumatologist); Luisa Safar Bourei, MD (nephrologist) and Juan Carlos Caicedo, MD, FACS (transplant surgeon).

The event also featured a panel discussion of patients.

The event was recorded and can be viewed in its entirety on our youtube channel here.

Chieck out more photos from the day here.

Sponsored by:

ILLINOIS LUPUS WALKS

2024 Chicago Illinois Lupus Walk & Fun Run
Wrap Up

Sept 15, 2024 

Thanks to everyone who turned out in Grant Park on September 15th to make the Chicago Lupus Walk & Fun Run a success!

Hundreds showed up and raised thousands toward our mission.

Participants enjoyed music, kids activities, team t-shirt contest and much more!

There's still time to qualify for incentive prizes - find out more here.

 
 

WESTERN SUBURBS LUPUS WALK 
WRAP UP

2024 Western Suburbs Lupus Walk  |  August 10, 2024

Thanks to the hundreds who came out to the LSI's Western Suburbs Lupus Walk last week.  Hundreds came out and raised thousands for lupus awareness and the LSI.

Participants enjoyed music, a kid's activities, team t-shirt contest and much more!

There's still time to raise funds and qualify for incentive prizes.  Find out more here.

SUPPORT GROUP UPDATE

LSI's Support Groups are an amazing resource. Meetings are run by lupus warrior volunteers who commit themselves to leading meetings and serving their communities. 

  You can find the LSI's support groups listed here and on our calendar here.

LUPUS CHARITY RUNNERS

Join Lupus Charity Runners for the 
2024 Bank of America Chicago Marathon

If you have your own spot in the Chicago Marathon, join us!

All of our RUNNERS receive the following benefits:

  • Training to help you complete the Bank of America Chicago Marathon safely!
  • 2 tickets to the pre-marathon pasta party!  
  • LSI Water Bottle + goodies! 
  • Lupus Charity Runner singlet! 
  • Additional fundraising incentives for exceeding your goal! 
  • Personalized fundraising webpage to help you reach your fundraising goal!
  • LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
  • Exhilaration of doing good for others while doing well for yourself! 

50TH ANNIVERSARY CELEBRATION

New memories are being made every day!  Join us and make memories of your own.

Share your photos, memories and congratulations!  We're celebrating our 50th anniversary and we want to hear from YOU!  Share your stories, photos or just congratulations here or post to social media using #LSI50!

Visit our website here and share!

RESEARCH OPPORTUNITIES

Fatigue & Lupus

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue?  Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).  

MORE

Lupus Clinical Trial Opportunity

If you have lupus, you may qualify.  
• Do you have active lupus that is not responding to your current medications?
• Are you between the ages of 18-65?
If so, you may be eligible to participate in a clinical trial testing if a new type of cellular therapy is effective and safe in treating active lupus.

MORE

 

312-542-0002 | info@lupusil.org 
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