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September 2023 

A Letter from the President

I hope this email finds you well and safe.

We have two great events coming up.  Tomorrow is the Annual Chicago Lupus Walk!  We have three special guests this year and we hope you'll join us and meet them.  Dr. Robert Katz, LSI's Board Chair and LSI's Medical Advisory Board Chair will be there.  We also have Dion Langley, drummer and lupus advocate will share a bit of his story and will raise his voice with us.  And Lupus Walk Ambassador Viktoria Baldo will be there - sharing her story.

We also have the team t-shirt contest, an amazing raffle, thoughtful sponsors and YOU - the lupus community who come together every year!

We also have our Annual Rush Lupus Clinic & LSI Educational Event coming up on December 2, 2023.  You can register here.  This year, we have four presentations and the Rush Lupus Clinic Q & A.

LSI is able to achieve its mission thanks to the success of the Illinois Lupus Walks.  We hope to see you on September 30th!

We are still looking for your memories!  As we celebrate our 50th Anniversary, we want to hear from you!  Take a moment to share your recollections with us online here or post it on social media using #LSI50!

In 50 years, we've come so far.  Together, we've made a difference.



Butterfly Effect Newsletter!


What do Dr. Katz, Dion Langley and Viktoria Baldo have in common?

They'll all be at the Chicago Lupus Walk tomorrow!

Dr. Robert Katz

Dion Langley

Viktoria Baldo

Lupus Walk Special Guest Dion Langley

Professional Drummer and Lupus Advocate Dion Langley, who initially was ashamed to reveal his diagnosis. “For three years after I was diagnosed with lupus, I didn’t share it with anyone. I wasn’t mentally prepared to face my masculinity being questioned: ‘How did he end up with a women's disease?’


New year, new Illinois Lupus Walk incentive prizes!  Check out the new items on our walk websites!

Chicago Walk & Fun Run  
Lincoln Park - September 30, 2023 
8:30am – Registration
10:00am – Walk Starts


Rush Lupus Clinic Team

Annual Rush Lupus Clinic &
LSI Educational Event 

Saturday, December 2, 2023  |  9:30am - 1:20pm

Topics include

What is Lupus?
     Presented by Dr. Ailda Nika

Why Do People with Lupus Lose Hair?
What Lab Tests Do My Doctors Do and Why?

     Presented by Dr. Meenakshi Jolly

Is Lupus in People of Color Any Different? 
     Presented by Dr. Dmitriy Cherny

Advocacy & Self Care
     Presented by LaShon Gurrola  MSN, FNP

Rush Lupus Clinic Q & A
     Presented by:
     Dr. Meenakshi Jolly
     Dr. Dmitriy Cherny
     Dr. Ailda Nika


Watch Facebook Live Educational Events!
(Click the image to watch a recording of the presentation)


Robertha (right) and her granddaughter Sanna (left) represent LSI at a Health Fair

LSI is fortunate to have active and engaged volunteers who represent us at Health Fairs!

If you are interested in volunteering, please contact Lisa at lisa@lupusil.org or call 312-542-0002


New memories are being made every day!  Join us tomorrow and make memories of your own.

Share your photos, memories and congratulations!  We're celebrating our 50th anniversary and we want to hear from YOU!  Share your stories, photos or just congratulations here!

Support Group Leader LaShon and her sorority posted their Happy 50th Anniversary Congratulations on Facebook!

Visit our website here and share!


Are you Running the
Bank of America Chicago Marathon?
Join Lupus Charity Runners!

All of our RUNNERS receive the following benefits:

Training to help you complete the Bank of America Chicago Marathon safely!
2 tickets to the pre-marathon pasta party!  
LSI Water Bottle + goodies! 
Lupus Charity Runner singlet! 
Additional fundraising incentives for exceeding your goal! 
Receive personalized fundraising webpage to help you reach your fundraising goal!
LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
Exhilaration of doing good for others while doing well for yourself! 


Fatigue & Lupus

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue?  Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).  


Lupus Clinical Trial Opportunity

If you have lupus, you may qualify.  
• Do you have active lupus that is not responding to your current medications?
• Are you between the ages of 18-65?
If so, you may be eligible to participate in a clinical trial testing if a new type of cellular therapy is effective and safe in treating active lupus.



312-542-0002 | info@lupusil.org 
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