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September 2022 

A Letter from the President

I hope this email finds you well and safe.

Thanks to everyone who helped make the Illinois Lupus Walks such a success!  We were THRILLED to get back to live events this year.

We hosted 3 live Lupus Walks this year - and raised over $100,000!  

Thank you for helping to move our mission forward!

The issue of the Butterfly Effect Lupus eNewsletter comes at an exciting time - we have several Lupus Educational Events coming up!

We have 2 webinars - scheduled  - Lupus, Anxiety & Depression presented by Dr. Ben Small on October 13th and Lupus & Fibromyalgia presented by Dr. Alexandra Katz Small on November 10th.

And 2 LIVE EVENTS!  On October 29, 2022, LSI is proud to partner with Kathleen & David Arntsen from the Lupus & Allied Disease Association on the Enhancing Lives by Empowering the Lupus Community Chicago Education Symposium & Luncheon.

This event will feature presentations from LSI's Board Chair Dr. Robert Katz as well as presentations from Kathleen Arntsen "The Power of Advocacy: Promoting Participation to Improve Care and Advance Research" and David Arntsen "Care Partner Perspectives: I Love Someone with Lupus."

This event is for anyone with lupus and anyone who cares about someone with lupus.

For more information and to register click here.

And save the date for the annual Rush Lupus Clinic and LSI Educational Event!  The event will be on December 3rd and will include expert presenters and a panel discussion with the Rush Lupus Clinic Doctors!

The Bank of America Chicago Marathon is coming up on October 9, 2022 and we have an incredible team again this year!  We hope you'll be able to come out on race day to our cheer station!  Please contact mary@lupusil.org for more information.

We look forward to seeing you soon.

Together we make a difference.


Research Opportunities

Fatigue & Lupus

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue?  Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).  


Lupus Clinical Trial Opportunity

If you have lupus, you may qualify.  
• Do you have active lupus that is not responding to your current medications?
• Are you between the ages of 18-65?
If so, you may be eligible to participate in a clinical trial testing if a new type of cellular therapy is effective and safe in treating active lupus.



Robert Katz, MD


A diagnosis of lupus can be difficult due to the gradual development of symptoms. Suspected cases must be confirmed by a series of blood tests such as anti-double-stranded DNA antibodies and anti-Smith antibodies. Levels of certain complement proteins, which are part of the immune system, are measured and help to track the disease. Low complements tend to suggest the presence of lupus and increased lupus disease activity. Doctors sometimes use the 1997 American College of Rheumatology criteria for the classification of systemic lupus erythematosus to aid in the diagnosis.



Ben Small, M.D.

Lupus, Anxiety & Depression 
Thursday, October 13, 2022 | 6:30pm
Presented by Dr. Ben Small

Most people with lupus report symptoms of depression and anxiety. Some studies report rates of depression and anxiety twice as high in people with lupus as compared to the general population.  

Join us for this important presentation.

Alexandra Katz Small, M.D.

Lupus & Fibromyalgia
Thursday, November 10, 2022
Presented by Dr. Alexandra Katz Small

Fibromyalgia is a disorder that can occur alone or secondary to connective tissue disorders such as lupus. Studies suggest that about 25% of people who have lupus also have fibromyalgia.  It is important for people who have lupus to learn about fibromyalgia because symptoms of both conditions can be similar, but the treatments are different. 

Click image to register!


Annual Rush Lupus Clinic & LSI Educational Event

Saturday, December 3, 2022

Rush University Medical Center
Searle Conference Center, 5th floor
1725 W. Harrison St., Chicago 
(Take Elevators 1 to the 5th floor, and you will see 
the entrance into the Main Lounge) 



LSI Introduced the "Wednesday Warrior of the Week" early this month.  Don't miss the Lupus Warriors highlighted weekly posted on social media and here, in the eNewsletter every month.


Thanks to everyone who made the 2022 Illinois Lupus Walks such a GREAT SUCCESS!  Submit your photos from the event to info@lupusil.org or tag us at #LSIWalk4Lupus and we'll add your photo to our Flickr Albums!  Click the walk below to check out photos available!


2022 Bank of America Chicago Marathon
Cheer Our Team! 

Join us at Adams & Laflin on Sunday, October 9, 2022 where we'll be cheering on our 2022 Lupus Charity Runner Team!

For more information, please contact mary@lupusil.org.


Are you interested in running the
Bank of America Chicago Marathon?
Join Lupus Charity Runners!

Since 2007, LSI has had a team in the Bank of America Chicago Marathon.  We are so proud of our runners and honored by the runners who have joined our team over and over again!  

If you have a spot in the race, join Lupus Charity Runners and get ALL of the benefits with NO fundraising minimum!

When you run for Lupus Charity Runners, we are with you every step of the way!  Team members get:

  • Training to help you complete the Bank of America Chicago Marathon safely!
  • 2 tickets to the pre-marathon pasta party!  
  • LSI Water Bottle + goodies! 
  • Lupus Charity Runner singlet! 
  • Additional fundraising incentives for exceeding your goal! 
  • Receive personalized fundraising webpage to help you reach your fundraising goal!
  • LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
  • Exhilaration of doing good for others while doing well for yourself! 


New Support Group Meeting Dates Listed

Ever thought of joining a Lupus Support Group?  Start planning now!  Groups are virtual and some meet in person.  Our Support Group Leaders are Lupus Warriors.

Please contact Lisa at lisa@lupusil.org or 312-542-0006 to find the group that best fits your schedule. Click here for a link to LSI's volunteer run Support Groups!


312-542-0002 | info@lupusil.org 
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