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November 2022 

A Letter from the President

I hope this email finds you well and safe.

Thanksgiving is less than a week away and that means the holidays have officially arrived.

As we all get excited about Black Friday and Cyber Monday, let's spend a moment on GivingTuesday.  GivingTuesday is a global generosity movement, unleashing the power of people and organizations to transform their communities and the world.  GivingTuesday is an opportunity for people around the world to stand together in unity⁠⁠—to use their individual power of generosity to remain connected and heal.

We hope you will consider to donating to our GivingTuesday campaign.

In the coming weeks we'll be looking back on our achievements in 2022 and forward to our goals for 2023.  Right now, we'd like to give thanks for today.

Thank you - to everyone who has participated in an educational event, a walk, health fair or other LSI activity.  Thank you - if you've volunteered at an event, the office or a board. Thank you to everyone who has raised awareness about lupus.  And an especially big thank you to anyone who has helped someone living with lupus - especially our support group leaders who are true heroes.

THANK YOU!

Before we move on to 2023, we have one final event this calendar year - the Rush Lupus Clinic & LSI Educational Event on December 3, 2022.  This is a fantastic  event and we hope you are able to participate.  Dr. Jolly, Dr. Nika and their team at Rush always have exceptional presentations and the Rush team is always accessible to answer questions.  

Like everything we do as LSI, this event is engaging and full of heart.  We hope you can attend.

LSI was proud to partner with Kathleen and David Arntsen on the Enhancing Lives by Empowering the Lupus Community event last month. What a wonderful event! You can see photos from the event  here and at right.  Our Board Chair Dr. Robert Katz also presented at the event.

We have added 3 webinars to our YouTube channel - you can now view Are You Ready for Something More? presented by Presented by Courtney Mitchell, BSN, MSN, CFNP, Patient Engagement Liaison, GSK; Lupus, Anxiety & Depression presented by Dr. Small and Lupus & Fibromyalgia presented by Dr. Alexandra Small.  

To everyone in the lupus community, we hope you have a wonderful and safe Thanksgiving!

Together we make a difference.

Mary

GivingTuesday - November 29

We are honored by your donation.

 

Enhancing Lives by Empowering the Lupus Community 
(click image to view more photos)

Charles Brummell, Dr. Robert Katz, Kathleen Arntsen and David Arntsen

Participants and sponsors at the Enhancing Lives by Empowering the Lupus Community event.

LIVE EDUCATIONAL EVENTS

Annual RUSH Lupus Clinic & LSI Educational Event

Saturday, December 3, 2022
9:30 a.m. – 1:00 p.m.

Rush University Medical Center
Searle Conference Center, Main Lounge, 5th floor
1725 W. Harrison Street, Chicago, IL, 60602
 

Join us on December 3, 2022 at 9:30am for another opportunity to learn from the experts.  

FIVE topics: Lupus & the Skin, Lupus & Men, New Medications & Lupus, Lupus & Body Image and What's it like to be a healthcare professional with lupus?

Like all of our annual RUSH Lupus Clinic Events, there will be a panel discussion with the Rush team.

Find out more and register today!

Topics

Lupus & the Skin
Presented by Dr. Penelope Skopis

Lupus & Men
Presented by Dr.  Dmitriy Cherny 

New Medications & Lupus
Presented by Dr. Ailda Nika

Lupus & Body Image
Presented by Dr. Meenakshi Jolly

What’s it like to be a healthcare professional with lupus?
Presented by Stacy Jaimes, MD &  
LaShon Gurrola, BSN, RN,  

Rush Lupus Clinic Panel Discussion

LUPUS ARTICLES & REVIEWS

Dmitriy Cherny, M.D.

WHAT YOU SHOULD KNOW ABOUT THE NEW STUDY TITLED: “ANTI-CD19 CAR T CELL THERAPY FOR REFRACTORY SYSTEMIC LUPUS ERYTHEMATOSUS”. 

The causes of lupus are complex, but it is known that a type of immune cell called a B-Cell, is thought to play a central role in lupus. For some patients, existing treatments are not able to control their disease, leading to devastating consequences. These patients are said to have “refractory lupus.” In these cases, experimental treatments are sometimes given. 

MORE

Dr. Robert Katz, LSI Board Chair

WHAT SHOULD PEOPLE WITH LUPUS KNOW ABOUT LUPUS DIAGNOSIS?

A diagnosis of lupus can be difficult due to the gradual development of symptoms. Suspected cases must be confirmed by a series of blood tests such as anti-double-stranded DNA antibodies and anti-Smith antibodies. Levels of certain complement proteins, which are part of the immune system, are measured and help to track the disease. Low complements tend to suggest the presence of lupus and increased lupus disease activity. Doctors sometimes use the 1997 American College of Rheumatology criteria for the classification of systemic lupus erythematosus to aid in the diagnosis.

MORE

Archived Webinars

Watch past webinars on our YouTube channel!  Find all of our archived webinars on our website here.

Click image for video

Are You Ready for Something More?
Presented by  Courtney Mitchell, BSN, MSN, CFNP, Patient Engagement Liaison, GSK

Click image for video

Lupus, Anxiety & Depression
Presented by Dr. Ben Small

Click image for video

Lupus & Fibromyalgia
Presented by Dr. Alexandra Katz Small

LUPUS CHARITY RUNNERS

Congratulations!

Our 2022 Lupus Charity Runner Team were amazing!  We were honored to get to know our 26 runners and so excited to be a part of their marathon journey.

This year's team brought in $45,000 towards our mission in Illinois.  

We've already started recruiting for the 2023 Bank of America Chicago Marathon.

Since 2007, LSI has had a team in the Bank of America Chicago Marathon.  We are so proud of our runners and honored by the runners who have joined our team over and over again!  

If you have a spot in the race, join Lupus Charity Runners and get ALL of the benefits with NO fundraising minimum!

When you run for Lupus Charity Runners, we are with you every step of the way!  Team members get:

  • Training to help you complete the Bank of America Chicago Marathon safely!
  • 2 tickets to the pre-marathon pasta party!  
  • LSI Water Bottle + goodies! 
  • Lupus Charity Runner singlet! 
  • Additional fundraising incentives for exceeding your goal! 
  • Receive personalized fundraising webpage to help you reach your fundraising goal!
  • LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
  • Exhilaration of doing good for others while doing well for yourself! 

FUNDRAISING EVENTS

Lifts for Lupus III
November 14-27

Kendra Scott Fundraiser
December 3, 2022
1-3pm
Old Orchard Mall
And ONLINE!
12/3-12/4
www.kendrascott.com
use promo code:
GIVEBACK-CZBYQ

RESEARCH OPPORTUNITIES

Fatigue & Lupus

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue?  Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).  

MORE

Lupus Clinical Trial Opportunity

If you have lupus, you may qualify.  
• Do you have active lupus that is not responding to your current medications?
• Are you between the ages of 18-65?
If so, you may be eligible to participate in a clinical trial testing if a new type of cellular therapy is effective and safe in treating active lupus.

MORE

SUPPORT GROUP UPDATE

New Support Group Meeting Dates Listed

Ever thought of joining a Lupus Support Group?  Start planning now!  Groups are virtual and some meet in person.  Our Support Group Leaders are Lupus Warriors.

Please contact Lisa at lisa@lupusil.org or 312-542-0006 to find the group that best fits your schedule. Click here for a link to LSI's volunteer run Support Groups!

 

312-542-0002 | info@lupusil.org 
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