A Letter from the President
I hope this email finds you well!
The holidays are here! We are looking back on 2021 and the impact we have made together - we couldn't do it without you! THANK YOU!
In this issue of the Butterfly Effect eNewsletter, we are planning our first live event of 2022 - the Empowering lupus Patient Educational Event on February 12, 2022. Stay tuned for more about this event.
We are also putting together 2022 Walk Committees! We are looking for volunteers for the Southern Suburbs, Western Suburbs and Chicago events. For more information and to join, contact Lisa at firstname.lastname@example.org
Get your guaranteed spot in the Bank of America Chicago Marathon BEFORE the lottery is drawn and you get a discount! Find out more here.
Before we say "goodbye" to 2021 let's say "hello" to the RUSH Lupus Clinic & LSI educational event. This annual event is virtual again this year and registration is free - and required. We'll have 3 presentations and a Q&A with the Rush Lupus Clinic doctors. Get your questions ready!
The shopping season is upon us - as well as end of year donations. We hope you will consider LSI for a donation on GivingTuesday - an international day of giving - this year on November 30, 2021 - or throughout the holiday season.
Your donation goes directly to our mission. Thanks to YOU we are able to provide educational events at no cost to participants. Thanks to YOU we are able to provide support to the lupus community when they have nowhere else to turn. THANK YOU!.
Together we make a difference
GivingTuesday is a global day of generosity that will take place on November 30, 2021.
4th Annual Rush Lupus Clinic-LSI Educational Event
December 4, 2021- 9:30am-1:30pm - Web Meeting
- Covid19 and Other Vaccines in Lupus, Presented by Dr. Dmitriy Cherny
- Different Types of Lupus, Presented by Dr. Ailda Nika
- Steroids in Lupus- Good or Bad?, Presented by Dr. Meenakshi Jolly
- and the popular Rush Lupus Clinic Staff panel discussion
Registration required for web meeting access.
Save the Date!
Empowering Lupus Patient Educational Event
Back for 2022 - our LIVE multi-topic educational event on Chicago's South Side!
February 12, 2022
9:30am - 1:30pm
Saint Xavier University | 3700 West 103rd St. | Chicago, IL 60655
Topics coming soon - be sure to SAVE THE DATE!
Catch up on past webinars on our YouTube channel!
LUPUS AND ANXIETY & DEPRESSION
By Dr. Robert Katz
The effects of exercise intervention on health-related quality of life in patients with systemic lupus in the journal Healthcare.
In this study, 1,058 articles were reviewed, and nine of them discussed systemic lupus and exercise. Five of them were randomized controlled trials, which is the best form of reliable research. The things that were positive were that exercise intervention compared to usual care might be able to improve the physical functioning and health-related quality of life in patients with lupus.
2021 Bank of America Chicago Marathon Team!
Thanks to all of our runners on the 2021 Chicago Marathon team! We have a great team and a great program and the proof are the runners who join our team year after year! We received the photos below from some of our runners. One of our runers, Robin M, shared her thoughts on our team (see below). If you've ever thought about running a marathon, contact LSI for information on our outstanding program and find out more here!
The marathon itself was amazing. It was crazy hot and humid. By mile 8 I knew there was no chance of me hitting my goal time and I was 100% ok with that. After all, I hadn’t trained for 80° temps and 84% humidity. I felt like I was breathing soup. So I decided I just wanted to finish without hurting myself, making myself sick and I wanted to take in the entire experience. I slowed way down, stopped at every single water and Gatorade station, visited and thanked the volunteers, thanked all the law enforcement officers, high fived every small child, I stopped to aid 3 separate runners with cramping by giving them salt tabs I carry in my running belt, I ran with a blind man, walked with a man who was going to quit with only two miles to go (man, I hope he finished) saw a million dogs, cried a few times over the sheer energy from the 26.2 mile cheer squad…. I literally soaked up every possible second of this race. It’s definitely something I will never ever forget. Thank you much for giving me this once in a lifetime moment.
2022 LUPUS WALK COMMITTES FORMING!
Don't miss this opportunity to leave your footprint on the 2022 Lupus Walks!
Here at LSI we are getting excited for the 2022 WALKS!!! We are looking for volunteers to join our walk committees. We will have a South suburban, Naperville, and Chicago walk. If you are interested in becoming a member, please contact Lisa at email@example.com or 312-542-0006. Together we can make a difference. #lupus #lupusawareness #LSIcommunity #joinacommittee #💜
Steppin' Out for Lupus Dinner Dance
April 29, 2022 | Nikos Banquets Bar & Grill | 7600 S. Harlem, Bridgeview, IL
Join the Associate Board as they raise funds and awareness for lupus with Steppin' Out for Lupus! Enjoy:
- Live music by The Band Chi Town
- Dance Lessons
- Dr. Ailda Nika, Medical Treatment/Medications
- Ta'She'Ana Banks, author "Cracked Foundation"
And More! Get your tickets and find out more here.
Glenview Lupus Support Group & YogaSix
The Glenview Lupus Support Group, led by Chris, hosted a special meeting at YogaSix in Glenview.
LSI's Lisa Klaslo helped facilitate this special class for this group.
Chris said: "There were four of us from the group that joined the beginner's class there. Our instructor, Debbie, was awesome! She understood that some of us had limitations on what we could do and she was very accommodating. She even brought a chair for our member Cathy who couldn't get down on the floor."
Thanks to YogaSix, Chris and Lisa and all of the partiicpants who made this event happen!
New Support Group!
LSI is proud to work with dedicated and compassionate volunteers who organize and lead support groups throughout the state.
LSI has a new Lupus Support Group starting in Central Illinois. The first meeting is scheduled for November 8, 2021 from 6-7pm.
Please contact Lisa at firstname.lastname@example.org or 312-542-0006 to find the group that best fits your schedule. Click here for a link to LSI's volunteer run Support Groups!
Thanks to our friends at UIC Fraternity Theta Lambda Beta for hosting Deadlifts for Lupus II!
COVID-19 RESOURCES & UPDATES
The LSI has led the lupus community through the COVID-19 crisis by providing expert educational information and providing factual information, including hosting 3 COVID-19 & the Lupus Community Web meetings with leading lupus doctors. You can watch the educational event below and the COVID-19 webpage here.
Fatigue & Lupus
A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.
How does someone manage fatigue? Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).