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March 2025 

A Letter from the President

I hope this email finds you well!

Walk season has finally arrived.

LSI is hosting one walk in Naperville, IL!  

The Illinois Lupus Walk will be at the Naperville Riverwalk on August 9, 2025. Registration is open!

There's still time to join the Lupus Walk planning committee. Planning committees provide volunteers an opportunity to shape the walk and make it unique.  For more information, contact Lisa@lupusil.org or call 312-542-0002.

We have an educational webinar coming up.  Mark your calendars for Thursday, May 29, 2025 when Dr Zineb Aouhab presents To Live with Lupus, We Need to Know About Lupus. If you've lived with lupus a long time or are recently diagnosed, you will learn something new.  Registration opens soon.

There are two new educational webinar recordings on our website.  Be sure to catch up on the latest. Cutaneous Lupus Educational Webinar  presented by Dr. Paras Vakharia and Heart Health Awareness Webinar Presented by: LaShon Gurrola, MSN, APRN, FNP-BC.

Be sure to purchase tickets for the  LSI Associate Board’s Soccer Match Event. Tickets have a face value of $45 but the AB is selling them for $36. Find out more and purchase your tickets here.

I wanted to highlight UIC's Theta Lambda Beta Fraternity, Inc for bringing back  "Deadlifts for Lupus" their Philanthropy Event benefitting LSI!  We are so grateful for the support of these young men! 

There is a lot going on at the LSI.  If you aren't signed up for our Social Media accounts, now's the time.  We're increasing and diversifying our content.  Check it out and be sure to LIKE and SHARE the content to increase lupus awareness.

We look forward to seeing at you at our Illinois Lupus Walk!

Together, we make a difference.

Mary 

LSI's Enhanced Social Media

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ILLINOIS LUPUS WALK

Illinois Lupus Walk
August 9, 2025  |  Naperville Riverwalk

This year, the Lupus Society of Illinois has made a challenging decision to proceed with only one walk, the Western Suburbs Chicago Lupus Walk

There are so many wonderful benefits to the Naperville location. 

  • One huge walk to meet and mingle with other lupus warriors
  • Free large parking area for all
  • Nearby train station for non drivers

We look forward to seeing you there!

EDUCATIONAL EVENTS

SAVE THE DATE
To Live with Lupus, We Need to Know About Lupus 
Thursday, May 29, 2025  | 7pm-8pm  |  Webinar

This event will be presented by Zineb Aouhab, MD, rheumatologist at Loyola and will include the history of lupus, medications and research updates. 

This event is free and open to the public.  Registration will open soon and is required to access the webinar.

 

Heart Health Awareness Webinar Recording
Presented by: LaShon Gurrola, MSN, APRN, FNP-BC

Watch this outstanding presentation featuring lupus warrior  LaShon Gurrola who shares her personal experiences as she educates us on lupus and cardiovascular health.

 

Cutaneous Lupus Educational Webinar Recording
Available Now!

On Thursday, February 20th, Dr. Vakharia presented on Cutaneous Lupus.  Like all of LSI's educational events, this event was free and open to the public.

The event was recorded and is currently posted to our website.

ASSOCIATE BOARD

Chicago Fire v. Atlanta United with the
LSI Associate Board

Saturday, May 10th | 1:30 PM

Join the LSI Associate Board on World Lupus Day!!!
Join the LSI Associate Board members at a soccer match at Solider Field to raise lupus awareness while having fun!  

Tickets are in section 214. LSI Associate Board seats are $36 with a face value of $45. $7 of your $36 ticket is a donated to the LSI.

LUPUS CHARITY RUNNERS

Join Lupus Charity Runners for the 
2025 Bank of America Chicago Marathon

If you have a spot in the 2025  Chicago Marathon, and you join Lupus Charity Runners, you'll receive the following benefits: 

  • Training to help you complete the Bank of America Chicago Marathon safely!
  • 2 tickets to the pre-marathon pasta party!  
  • LSI Water Bottle + goodies! 
  • Lupus Charity Runner singlet! 
  • Additional fundraising incentives for exceeding your goal! 
  • Personalized fundraising webpage to help you reach your fundraising goal!
  • LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
  • Exhilaration of doing good for others while doing well for yourself! 

THIRD PARTY EVENTS

Deadlifts for Lupus Spring 2025
Theta Lambda Beta Fraternity, Inc is excited to bring back our "Deadlifts for Lupus" Philanthropy Event in collaboration with Lupus Society of Illinois! 

Join Theta Lambda Beta Fraternity and be a part of a fun virtual deadlifting competition, with prizes and more fun activities. With this event Theta Lambda Beta hope to spread awareness about Lupus and raise funds to support the Lupus Society of Illinois!

MORE

Do you still want to show support for "Deadlifts for Lupus" but are unable to participate?
Sponsor an athlete participating in the event or donate directly!
All contributions will be directly donated to the Lupus Society of Illinois (LSI).
Click here

SUPPORT GROUP UPDATE

LSI's Support Groups are an amazing resource. Meetings are run by lupus warrior volunteers who commit themselves to leading meetings and serving their communities. 

  You can find the LSI's support groups listed here and on our calendar here.

RESEARCH OPPORTUNITIES

Fatigue & Lupus

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue?  Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).  

MORE

Lupus Clinical Trial Opportunity

If you have lupus, you may qualify.  
• Do you have active lupus that is not responding to your current medications?
• Are you between the ages of 18-65?
If so, you may be eligible to participate in a clinical trial testing if a new type of cellular therapy is effective and safe in treating active lupus.

MORE

312-542-0002 | info@lupusil.org 
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