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March 2023 

A Letter from the President

I hope this email finds you well and safe.

Depending on the day, spring feels like it's days or weeks away.  The important fact is spring is almost here and that means Lupus Awareness Month and the Illinois Lupus Walks!

Perhaps spring will be in full bloom in time for our Empowering Lupus Patient Educational event coming up on Saturday, April 15, 2023.  For nearly 15 years, this event has provided information to help people with lupus live their best lives.  

This year's event includes presentation from Richard Mebane on Lupus and Exercise and LSI's Lupus Navigator Mari Gonzalez.  The first presenter will be Dr. Irene Blanco who is presenting on Lupus, Pregnancy & Contraception.

Like all of LSI's live events, we'll include time for the lupus community to meet and network.  

The Illinois Lupus Walks are open and ready for registration!  We have two walks this year - the Western Suburbs Lupus Walk in Naperville on August 12th and the Chicago Lupus Walk & Fun Run in Lincoln Park on September 30th.

These events are always fun and family-friendly, and with our 50th Anniversary year, we're working to make all of our events extra special!  Join one of Lupus Walk committees and help plan these awesome events!  Contact Lisa at 312-542-0002 or lisa@lupusil.org for more on joining a committee.

We are celebrating our 50th anniversary all year and we are collecting memories, photos and congratulations!  You can submit those on social media using #LSI50 or complete our form here.

Thanks to Regina for sharing her memory-about her dad and our lupus walks- and photo - you can read Regina's memory below.

There's so much going on in the lupus community and we hope you'll read all about it in this newsletter!

In 50 years, we've come so far.  Together, we've made a difference.


Lupus Warrior Wednesday
Alisa Stevens

Full Article & Find Out How to Support Alisa Steven's in the USA's Mrs. America contest!


Kay Mimms & Zeta Zeta Chapter President Tiffany S Clemmons

Kay Mimms receives the Janice Gnatt Kissner Award from Zeta Phi Beta Sorority Inc, Zeta Zeta Chapter! 

Congratulations, Kay!  Thanks to Roberta Morris for nominating Kay for this prestigious award!


Saint Xavier University
WAC L203, Butler Reception Room; 3700 West 103rd St.
Chicago, IL 60655  



Empowering Lupus Patient Educational Event
Saturday, April 15, 2023  |  9:30am-1:30pm

9:30am - Registration/Check in

10:00am - Lupus, Pregnancy and Contraception, Presented by Dr. Irene Blanco

11:00am - Break

11:15am - Lupus & Exercise, Presented by Richard Mebane

12:15am - Break

12:30pm - LSI’s Lupus Navigator: Frequently Asked Questions, Presented by: Mari Gonzalez 

Each presentation is 45 minutes long and includes a Q&A.
2 breaks are included.
Refreshments will be served




The LSI Associate Board hosted a friend-raiser at the Chicago Bulls game on March 5th.  

The event brought out Associate Board members, new friends of the LSi and some brand new supporter :-).

If you are interested in joining the Associate Board, contact Lisa Klaslo at 312-542-0002 or lisa@lupusil.org.



Western Suburbs Lupus Walk
Naperville - August 12, 2023
9:00am – Registration
10:00am – Walk Starts

Chicago Walk & Fun Run  
Lincoln Park - September 30, 2023 
8:30am – Registration
10:00am – Walk Starts


Fond Memories

My Memory was started back in 2007 at our first Lupus walk. I created a Team in Honor of my Dad ¨Paco¨ Pacoś Posse. He had lupus for 39 years. I found this Great Team of Lupus supporting people.
Keep Rockín Lupus Society of Illinois!!!!!!

Share your own memories on Social Media (use #LSI50) or on our website here.


We've already started recruiting for the 2023 Bank of America Chicago Marathon.

Since 2007, LSI has had a team in the Bank of America Chicago Marathon.  We are so proud of our runners and honored by the runners who have joined our team over and over again!  

If you are looking for a guaranteed spot in the marathon, join Lupus Charity Runners!  Guaranteed spots come with a fundraising minimum.

If you have a spot in the race, join Lupus Charity Runners and get ALL of the benefits with NO fundraising minimum!

When you run for Lupus Charity Runners, we are with you every step of the way!  Team members get:

  • Training to help you complete the Bank of America Chicago Marathon safely!
  • 2 tickets to the pre-marathon pasta party!  
  • LSI Water Bottle + goodies! 
  • Lupus Charity Runner singlet! 
  • Additional fundraising incentives for exceeding your goal! 
  • Receive personalized fundraising webpage to help you reach your fundraising goal!
  • LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
  • Exhilaration of doing good for others while doing well for yourself! 



Join iGive today (for free) via this link: https://www.iGive.com/LupusSocietyofIllinoi When you login & shop their 2,000+ stores (think Chewy, Walmart, Expedia and so many more), we'll earn donations!

Click here for more.


Donate unused gift cards online. You can now exchange your unused or partially used gift cards to benefit

Click here for more.


Fatigue & Lupus

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue?  Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).  


Lupus Clinical Trial Opportunity

If you have lupus, you may qualify.  
• Do you have active lupus that is not responding to your current medications?
• Are you between the ages of 18-65?
If so, you may be eligible to participate in a clinical trial testing if a new type of cellular therapy is effective and safe in treating active lupus.



New Support Group Meeting Dates Listed

Ever thought of joining a Lupus Support Group?  Start planning now!  Groups are virtual and some meet in person.  Our Support Group Leaders are Lupus Warriors.

Please contact Lisa at lisa@lupusil.org or 312-542-0006 to find the group that best fits your schedule. Click here for a link to LSI's volunteer run Support Groups!


312-542-0002 | info@lupusil.org 
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