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March 2022 

A Letter from the President

Welcome!  There's so much to report on! Our first live educational event is happening on April 23, 2022.  the Empowering Lupus Patients Educational Event is focusing on lupus and kidney health.  We hope you can join us for this special event - it will be wonderful to see you!

We have a new column we're launching - "Should People with Lupus..." will answer question in a direct manner.  Stay tuned for more important topics and if you have a question you'd like answered, send it to me at mary@lupusil.org.

We have launched Lupus Walk season.  This year the Southern Suburbs Lupus Walk will include Cruisin' for Lupus - a fun way to participate in the Lupus Walk without getting out of your car!  Stay tuned for more information on this fun event.  It's never too early to register for the Lupus Walks and start your team. 

Lupus Walks are a great way to show your support to the lupus community.  It's a great opportunity to educate your community about lupus while raising important funds to continue our mission in Illinois.

And if the Lupus Walk isn't a big enough challenge, there's still time to join Lupus Charity Runners for the Bank of America Chicago Marathon!  We have GUARANTEED SPOTS - but they are going fast.  Contact mary@lupusil.org for more information if you are interested.  We always have a wonderful team of lupus champions.

Finally, i want to bring to your attention that March 30th is Doctor's Day - an annual observance aimed at appreciating physicians who help save our lives.  What an important day for everyone living with lupus and those who care about them.

We are fortunate to have access to expert medical advice to help guide our efforts.  Our Medical Advisory Board physicians are leaders in the field and we are grateful for their support.

And we are grateful for YOUR support as well.

Together we make a difference.


Introducing a NEW column
Should People with Lupus...

Get the COVID-19 Booster Vaccines?

The COVID-19 vaccines are effective, including a booster dose, in vulnerable lupus patients, including those taking immunosuppressive therapies.

An additional booster dose, or a fourth dose, is reasonable for patients with lupus, especially those on immunocompromising medications.



Saint Xavier University
WAC L203, Butler Reception Room; 3700 West 103rd St.
Chicago, IL 60655  

Empowering Lupus Patients Educational Event
Saturday, April 23, 2022 | 9:30am - 1:30pm

 9:30am     Registration/Check in
10:00am     Lupus & Kidney Health
11:15am     Living Donation-The Ultimate Gift
                  Presented by Tonya Rhodan, Living Donor
12:30pm     Panel Discussion
                  Featuring lupus nephritis patients and caregivers

Each presentation is 45 minutes long and includes a Q&A.


Alexandra Katz Small, M.D.

Lupus & Fibromyalgia
Thursday, November 10, 2022 | 6:30pm

Fibromyalgia is a disorder that can occur alone or secondary to connective tissue disorders such as lupus. Studies suggest that about 25% of people who have lupus also have fibromyalgia.  It is important for people who have lupus to learn about fibromyalgia because symptoms of both conditions can be similar, but the treatments are different. 

Presented by Dr. Alexandra Katz Small


Save the Date!
Lupus, Anxiety & Depression
Thursday, October 13, 2022
Presented by Dr. Ben Small


Karen Mancera-Cuevas, PhD

Lupus & COVID-19: Understanding Vaccines, Boosters & Treatments

Watched the video!


March 30 is Doctors’ Day, an annual observance aimed at appreciating physicians who help save our lives everywhere. The holiday first started in 1933 in Winder , Georgia, and since then it’s been honored every year on March 30 which was the first anniversary of a doctor using ether anesthesia by Dr. Crawford W. Long.


Southern Suburbs Lupus Walk &
Cruisin' for Lupus

May 14, 2022
Prairie State College
9:00am - Fun Begins

2022 Western Suburbs Lupus Walk
August 13, 2022
Naperville Riverwalk, Grand Pavilion
9:00am – Registration Begins
10:00am – Walk Steps Off

2022 Chicago Illinois Lupus Walk
& Fun Run

September 18, 2022
Rowing Lagoon – Lincoln Park
8:30am – Registration Begins
10:00am – Walk Steps Off

lupus Walk season has officially begun!  And we want you to join us - safely.

Here at Lupus Society of Illinois, our number one priority is to keep our employees, volunteers, and community safe.  For the last two years, we have hosted webinars and virtual activities.  We are excited to host LIVE Lupus Walk events!

And now we'd like to invite you, your families, and network of friends and colleagues to join in some fun and creativity by building your own personal fundraising pages for the Illinois Lupus Walks. 

Funds raised at the Lupus Walks go directly toward LSI's mission - like our upcoming Educational Event, Empowering Lupus Patients Educational Event on April 23, 2022!  Register today!



Guarantee Your Spot in the 2022 Bank of America Chicago Marathon!

Since 2007, LSI has had a team in the Bank of America Chicago Marathon.  We are so proud of our runners and honored by the runners who have joined our team over and over again!  

We have a limited number of spots still available for the 2022 race.  The spots are given on a first come first serve basis.

When you run for Lupus Charity Runners, we are with you every step of the way!  Team members get:

  • Training to help you complete the Bank of America Chicago Marathon safely!
  • 2 tickets to the pre-marathon pasta party!  
  • LSI Water Bottle + goodies! 
  • Lupus Charity Runner singlet! 
  • Additional fundraising incentives for exceeding your goal! 
  • Receive personalized fundraising webpage to help you reach your fundraising goal!
  • LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
  • Exhilaration of doing good for others while doing well for yourself! 


Don't miss this opportunity to leave your footprint on the 2022 Lupus Walks!

Here at LSI we are getting excited for the 2022 WALKS!!! We are looking for volunteers to join our walk committees. We will have a South suburban, Naperville, and Chicago walk. If you are interested in becoming a member, please contact Lisa at lisa@lupusil.org or 312-542-0006. Together we can make a difference. #lupus #lupusawareness #LSIcommunity #joinacommittee #💜


New Year Support Group Meeting Dates Listed

Ever thought of joining a Lupus Support Group?  Start planning now!  Groups are virtual and some meet in person.  Our Support Group Leaders are Lupus Warriors.

Please contact Lisa at lisa@lupusil.org or 312-542-0006 to find the group that best fits your schedule. Click here for a link to LSI's volunteer run Support Groups!


The LSI has led the lupus community through the COVID-19 crisis by providing expert educational information and providing factual information, including hosting 3 COVID-19 & the Lupus Community Web meetings with leading lupus doctors. You can watch the educational event below and the COVID-19 webpage here.

Click the image to access the Web Meeting with Dr. Ramsey-Goldman

Click the image to access the Web Meeting with Dr. Jolly

Click the image to access the Web Meeting with Dr. Katz


Team Gayla's Gang

Fatigue & Lupus

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue?  Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).  


312-542-0002 | info@lupusil.org 
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