A Letter from the CEO
I hope this email finds you well and enjoying the last few days of summer.
Please join us on September 23rd for Introduction to Lupus & Lupus Nephritis. Up to 50% of patients with lupus will develop kidney issues, so this is a webinar you don't want to miss.
The event is FREE and VIRTUAL! Register now https://www.lupusil.org/event/2/
Below you can read the the latest update on Lupus & the Booster Vaccine by Dr. Katz, our Board Chair! You can also check in with our Chairty Runners, seeing what the Assoicate Board has planned for Spring 2022, and shop with Custom Silence.
We are so grateful for the continued support of you and all of our donors!
There's a lot to get through in this enewsletter - we hope you enjoy it!
Together we make a difference!
Did you miss the Live Streaming Event?
Don't worry, you can watch it now on YouTube.
You still have time to get incentive prizes!
*Deadline is 9/30!!
Introduction to Lupus & Lupus Nephritis
September 23, 2021 - 6:00pm - Web Meeting
We’ll talk about some of the basics of lupus, while focusing on systemic lupus erythematosus, or SLE, and lupus nephritis, one potential complication of lupus that involves the kidneys.
Registration required for web meeting access.
Watch Past Educational Events!
The Lupus Connection Support Group has suffered the loss of a dedicated member, Robinzina "Zina" Bryant. In addition to her support with the LSI, Zina was also an active member of Alpha Kappa Alpha Sorority Incorporated and worked with many other organizations and charities. Zina will be truly missed by everyone at the Lupus Connection Support Group.
If you wish to make a tribute donation in Zina's name, please click on the following link.
9/12/1966 - 9/12/2021
LUPUS & VACCINE BOOSTER UPDATE
LUPUS PATIENTS AND THE VACCINE BOOSTER
Pharmacies are now offering booster shots for immunocompromised patients. Many lupus patients qualify because they are being treated with prednisone and other potentially immunosuppressive medications.
Now may be the best time to receive the booster vaccine, since pharmacies may start requiring scheduled appointments. You can take advantage of this current availability if you are immunocompromised based on your diagnosis and the medications you are taking.
Bank of America Chicago Marathon
On October 10th, LSI has 19 runners participating in the Chicago Marathon! Please help us cheer them on. They have all been doing an amazing job with their training and raising lupus awareness.
Find out more here and meet the runners!
LSI has partnered with Custom Silence!
Custom Silence will be donating to LSI from now through December. They have 20 custom lupus awareness items. Any lupus awareness purchase made, Custom Silence will donate 50% of the profits to LSI. Check out their Esty shop. #lupus #lupusawareness #shopsmall #💜
Save the Date!!!
The LSI Associate Board, is planning a banquet April 29, 2022. This will be a fun night of dinner, dancing and fun!!! Put this on your calendar now. More details on how to get tickets and information about the night coming soon.
COVID-19 RESOURCES & UPDATES
The LSI has led the lupus community through the COVID-19 crisis by providing expert educational information and providing factual information, including hosting 3 COVID-19 & the Lupus Community Web meetings with leading lupus doctors. You can watch the educational event below and the COVID-19 webpage here.
Should People with Lupus Get the COVID-19 Vaccine
By Dr. Robert Katz
On December 11, 2020, the U.S. Food and Drug Administration issued the first emergency use authorization (EUA) for a vaccine for the prevention of coronavirus disease 2019 (COVID-19)
Fatigue & Lupus
A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.
How does someone manage fatigue? Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).