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January 2023 

A Letter from the President

I hope this email finds you well and safe.

Welcome 2023!  This year, LSI celebrates 50 years of service to Illinois' lupus community.  As you can imagine, we are very excited about this milestone.

In 1973, a group of volunteers got together to improve the lives of people with lupus.  At the time, lupus was even less understood than it is now, there were no drugs FDA approved to treat lupus and there was no place for people with lupus or their families to turn.

Now, nearly 50 years later, the LSI is here, with financial assistance, support groups, communications and accurate information to serve the lupus community.  The Lupus Navigator is available to help people with lupus and their families with lupus-related concerns.

And, thanks to the LSI's advocacy and partnering with national advocacy groups, and pharmaceutical companies, there are multiple FDA approved lupus drugs.

We've come so far.  Together, we've made a difference.

And we want to celebrate together as we continue to serve the lupus community. 

We want to hear your stories about the last 50 years!

What has your lupus journey been like?  When did you discover the LSI?  How has the lupus-landscape changed since lupus entered your life?

Share your photos, memories and stories on social media (use #LSI50) or on our website here.

It's important to look back as together we move forward.

Together we make a difference.


Lupus Article

Local Rheumatologist Dr. Irene Blanca was interviewed in this article published online at "My Health Team"

read the article here.


Lupus News

Read the latest in lupus news here.



Sunday March 5, 2023 @ 2:30pm

This event is a social event  hosted by the LSI Associate Board, this is not a fundraiser. 

Ticket prices are subject to increase as we get closer to the event date. We suggest everyone buys their tickets sooner than later. 

Please wear purple, your AB shirts (if you have one) or an LSI shirt. The purpose of this event is to raise lupus awareness while having fun!

Gates open at 1pm, game starts at 2:30. 

More Info/Buy Your Tickets



Western Suburbs Lupus Walk
Naperville August 13, 2023

Chicago Walk & Fun Run - Lincoln Park
September 18, 2023 (tentative date)


LSI is celebrating 50 Years of Service!  We are inviting you to share your memories, stories and photos over the years to celebrate!  Take a look at "Sharonna's Family-Over the Years" shared below.

Share your own memories on Social Media (use #LSI50) or on our website here.


We've already started recruiting for the 2023 Bank of America Chicago Marathon.

Since 2007, LSI has had a team in the Bank of America Chicago Marathon.  We are so proud of our runners and honored by the runners who have joined our team over and over again!  

If you are looking for a guaranteed spot in the marathon, join Lupus Charity Runners!  Guaranteed spots come with a fundraising minimum.

If you have a spot in the race, join Lupus Charity Runners and get ALL of the benefits with NO fundraising minimum!

When you run for Lupus Charity Runners, we are with you every step of the way!  Team members get:

  • Training to help you complete the Bank of America Chicago Marathon safely!
  • 2 tickets to the pre-marathon pasta party!  
  • LSI Water Bottle + goodies! 
  • Lupus Charity Runner singlet! 
  • Additional fundraising incentives for exceeding your goal! 
  • Receive personalized fundraising webpage to help you reach your fundraising goal!
  • LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
  • Exhilaration of doing good for others while doing well for yourself! 


Fatigue & Lupus

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue?  Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).  


Lupus Clinical Trial Opportunity

If you have lupus, you may qualify.  
• Do you have active lupus that is not responding to your current medications?
• Are you between the ages of 18-65?
If so, you may be eligible to participate in a clinical trial testing if a new type of cellular therapy is effective and safe in treating active lupus.



New Support Group Meeting Dates Listed

Ever thought of joining a Lupus Support Group?  Start planning now!  Groups are virtual and some meet in person.  Our Support Group Leaders are Lupus Warriors.

Please contact Lisa at lisa@lupusil.org or 312-542-0006 to find the group that best fits your schedule. Click here for a link to LSI's volunteer run Support Groups!


312-542-0002 | info@lupusil.org 
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