A Letter from the President
I hope this email finds you well!
The year is almost over! As we look back there is so much to be grateful for - especially for the lupus community. 2021 saw two new lupus drugs approved by the FDA. This is wonderful news! for more information on the state of lupus treatments, read Dr. Ailda Nika's article here.
LSI was also able to bring you eleven educational webinars - with topics as varied as "Understanding Lupus & the COVID-19 Vaccine", "Bringing Lupus Nephritis Our of the Shadows" and "Caring for Someone with Lupus".
Donations make these educational events possible.
We are honored by the trust our donors show in us. We work hard every day to provide the best programs and services to YOU. Donors make that possible.
If you haven't yet, please donate to the LSI this holiday season.
Be sure to save the date for our next educational event - the Empowering Lupus Patients Educational Event on Febraury 12, 2022.
Many of the LSI's Support Group leaders have listed the dates of their meetings for 2022. Be sure to check those out here.
Don't forget you can see all of LSI's past educational events here.
Together we make a difference
Where We Stand with Lupus Treatments
The face of lupus therapy is changing rapidly.
We are closing 2021 with additions to our armamentarium (the medicines, equipment, and techniques available to a medical practitioner) for allowing a higher proportion of lupus patients to achieve a low disease activity and aim for remission.
Save the Date!
Empowering Lupus Patient Educational Event
Back for 2022 - our LIVE multi-topic educational event on Chicago's South Side!
February 12, 2022
9:30am - 1:30pm
Saint Xavier University | 3700 West 103rd St. | Chicago, IL 60655
Topics coming soon - be sure to SAVE THE DATE!
Catch Up on the RUSH Lupus Clinic & LSI Educational Event
LSI hosted the RUSH Lupus Clinic & LSI Educational event on 12/4/21. The event was recorded and the 4 sessions are linked to below. You can also see these and all of LSI's past educational events listed on our website here.
Guarantee Your Spot in the 2022 Bank of America Chicago Marathon!
Since 2007, LSI has had a team in the Bank of America Chicago Marathon. We are so proud of our runners and honored by the runners who have joined our team over and over again!
We have a limited number of spots still available for the 2022 race. The spots are given on a first come first serve basis.
When you run for Lupus Charity Runners, we are with you every step of the way! Team members get:
- Training to help you complete the Bank of America Chicago Marathon safely!
- 2 tickets to the pre-marathon pasta party!
- LSI Water Bottle + goodies!
- Lupus Charity Runner singlet!
- Additional fundraising incentives for exceeding your goal!
- Receive personalized fundraising webpage to help you reach your fundraising goal!
- LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal!
- Exhilaration of doing good for others while doing well for yourself!
2022 LUPUS WALK COMMITTES FORMING!
Don't miss this opportunity to leave your footprint on the 2022 Lupus Walks!
Here at LSI we are getting excited for the 2022 WALKS!!! We are looking for volunteers to join our walk committees. We will have a South suburban, Naperville, and Chicago walk. If you are interested in becoming a member, please contact Lisa at firstname.lastname@example.org or 312-542-0006. Together we can make a difference. #lupus #lupusawareness #LSIcommunity #joinacommittee #💜
Steppin' Out for Lupus Dinner Dance
April 29, 2022 | Nikos Banquets Bar & Grill | 7600 S. Harlem, Bridgeview, IL
Join the Associate Board as they raise funds and awareness for lupus with Steppin' Out for Lupus! Enjoy:
- Live music by The Band Chi Town
- Dance Lessons
- Dr. Ailda Nika, Medical Treatment/Medications
- Ta'She'Ana Banks, author "Cracked Foundation"
And More! Get your tickets and find out more here.
New Year Support Group Meeting Dates Listed
Ever thought of joining a Lupus Support Group? Start planning now! Groups are virtual and some meet in person. Our Support Group Leaders are Lupus Warriors.
Please contact Lisa at email@example.com or 312-542-0006 to find the group that best fits your schedule. Click here for a link to LSI's volunteer run Support Groups!
COVID-19 RESOURCES & UPDATES
The LSI has led the lupus community through the COVID-19 crisis by providing expert educational information and providing factual information, including hosting 3 COVID-19 & the Lupus Community Web meetings with leading lupus doctors. You can watch the educational event below and the COVID-19 webpage here.
Fatigue & Lupus
A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.
How does someone manage fatigue? Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).