A Letter from the President
Happy New Year!
We are SO excited to announce our first educational event of the year: LUPUS & COVID-19: UNDERSTANDING VACCINES, BOOSTERS & TREATMENTS.
This Public Health presentation will be presented by Dr. Karen Mancera-Cuevas,Deputy Director of Health Promotion at the Illinois Department of Public Health.
This event, like all of LSI's educational events, are free and open to the public. YOU make these events possible. If you donate, participate in an Illinois Lupus Walk or volunteer at the LSI, you make our mission possible. Thank you!
We are always honored when a Lupus Warrior shares their story. Today we are honored to share Alisa Stevens' story. Read the entire story here. Alisa and her lovely family are long-time members of the LSI family.
Be sure to read Medical Advisory Board Member and Director of the Rush Lupus Clinic's published abstract - read the full article here!
Have you ever thought about running a marathon? If so, we hope you'll join Lupus Charity Runners for the 2022 Bank of America Chicago Marathon. We have guaranteed spots and if you have a spot already, you can still join our team and get FULL BEBFITS! Read below or click here for more.
Don't forget you can see all of LSI's past educational events here.
Together we make a difference
Does hydroxychloroquine improve patient reported outcomes in patients with lupus?
LSI Medical Advisory Board member and Director of the RUSH Lupus Clinic Dr. Meenakshi Jolly lead an investigation on Hydroxychloroquine (HCQ) use and patient reported outcomes.
Lupus & COVID-19: Understanding Vaccines, Boosters & Treatments
Thursday, March 10, 2022 | 6:30pm
Join us for this public health presentation where we will learn about COVID-19 vaccines, boosters and treatments. We’ll learn about the latest information available from an expert presenter.
Submit your questions by March 3, 2022 to firstname.lastname@example.org.
Join us as we talk with Dr. Karen Mancera-Cuevas, Deputy Director of Health Promotion at the Illinois Department of Public Health.
Save the Date: Thursday, August 25, 2022
Lupus, Anxiety & Depression
Presented by LSI's Board Chair and Medical Advisory Board Chair
Dr. Robert Katz
Registration is opening soon!
Alisa Stevens: Lupus Warrior
How has your life changed since your diagnosis?
I had to realize that I am not Wonder Woman and learn to pace myself and not try to take on too much. I have days, sometimes even weeks where my energy level is at 100% but there are days where I struggle to get out of bed. It can be depressing and challenging but it has taught me to cherish the days when I feel my best.
Read Full Story
Guarantee Your Spot in the 2022 Bank of America Chicago Marathon!
Since 2007, LSI has had a team in the Bank of America Chicago Marathon. We are so proud of our runners and honored by the runners who have joined our team over and over again!
We have a limited number of spots still available for the 2022 race. The spots are given on a first come first serve basis.
When you run for Lupus Charity Runners, we are with you every step of the way! Team members get:
- Training to help you complete the Bank of America Chicago Marathon safely!
- 2 tickets to the pre-marathon pasta party!
- LSI Water Bottle + goodies!
- Lupus Charity Runner singlet!
- Additional fundraising incentives for exceeding your goal!
- Receive personalized fundraising webpage to help you reach your fundraising goal!
- LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal!
- Exhilaration of doing good for others while doing well for yourself!
2022 LUPUS WALK COMMITTES FORMING!
Don't miss this opportunity to leave your footprint on the 2022 Lupus Walks!
Here at LSI we are getting excited for the 2022 WALKS!!! We are looking for volunteers to join our walk committees. We will have a South suburban, Naperville, and Chicago walk. If you are interested in becoming a member, please contact Lisa at email@example.com or 312-542-0006. Together we can make a difference. #lupus #lupusawareness #LSIcommunity #joinacommittee #💜
New Year Support Group Meeting Dates Listed
Ever thought of joining a Lupus Support Group? Start planning now! Groups are virtual and some meet in person. Our Support Group Leaders are Lupus Warriors.
Please contact Lisa at firstname.lastname@example.org or 312-542-0006 to find the group that best fits your schedule. Click here for a link to LSI's volunteer run Support Groups!
COVID-19 RESOURCES & UPDATES
The LSI has led the lupus community through the COVID-19 crisis by providing expert educational information and providing factual information, including hosting 3 COVID-19 & the Lupus Community Web meetings with leading lupus doctors. You can watch the educational event below and the COVID-19 webpage here.
Fatigue & Lupus
A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.
How does someone manage fatigue? Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).