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August 2024 

A Letter from the President

I hope this email finds you well!

Walk season is here.  My favorite thing about the Illinois Lupus Walks is catching up with the participants and volunteers every year.  We saw 300 supporters at the Western Suburbs Lupus Walk on August 10th and we hope to see even more of you at the Chicago Lupus Walk & Fun Run on Sunday, September 15th.  

Walks are so important for many reasons;  walks are a great introduction to lupus and the LSI.  We have met many lupus warriors for the first time at lupus walks.  Participants can build their own lupus network by surrounding themselves with the lupus community.  And, funds raised through the walks are instrumental in continuing our mission, like educational events  and financial assistance grants.  

We hope you'll join us 2 weeks from Sunday for the Chicago Lupus Walk - we have an awesome raffle, face painting, kid's activities, team t-shirt contest and much more!

LSi has a team in the 2024 Bank of America Chicago Marathon.  We've had a team in this event since 2007.  This year, 36 runners who have worked so hard will join over 45,000 runners on October 13th as they take on 26.2 miles in support of lupus and LSI's mission.

If you get a chance, take a look at the event page and read some of the stories. 

A huge thank you to all of our runners - past and present - for their outstanding commitment to our mission!

LSI's Support Group Leaders are amazing and we are so grateful to have them as part of our lupus family.  If you're interested in finding out more about support groups, contact lisa@lupusil.org.

The Lupus Spoons support group just celebrated its 5th anniversary earlier this year.  Thanks to Mari for sharing photos from the celebration and thanks to all of our support group leaders for their continued support and hard work.

Together we make a difference.

Mary

 

Research Opportunity

This Activate study aims to engage and empower community leaders to share accurate and well guided messages about COVID-19 vaccines with their community members. 

For more information click here or contact mary@lupusil.org.

SPECIAL EVENTS

Main Street Nights Lupus Night

Thanks to everyone who came out for the Main Street Nights lupus night on July 31, 2024!

LSI's Lisa Klaslo and our amazing volunteers were on hand with lupus information and to answer any questions about lupus.  The highlight was when lupus champions Roberta and Betsy talked to the crowd about lupus and the LSI.

 

Community Health Forum in Rock Island

Lupus champion LaShon Gurrola presented at a community event in Rock Island.  LaShon talked about lupus and her experiences with lupus as well as talking about lupus.

Thanks, LaShon, for all you do for the lupus community!

EDUCATIONAL EVENTS

Sponsored by:

 

ILLINOIS LUPUS WALKS

2024 Chicago Illinois Lupus Walk &
Fun Run

Sept 15, 2024 (Date subject to change)
Arvey Park| Grant Park
8:30am – Registration
10:00am – Walk Starts

Join in on all the fun!

  • Kid activities - kid's dash, face painting and more!
  • Raffle - with awesome packages!
  • DJ Rick and awesome music!
  • Team t-shirt contest!
  • much more!
 

WESTERN SUBURBS LUPUS WALK 
WRAP UP

2024 Western Suburbs Lupus Walk  |  August 10, 2024

Thanks to the hundreds who came out to the LSI's Western Suburbs Lupus Walk last week.  Hundreds came out and raised thousands for lupus awareness and the LSI.

Participants enjoyed music, a kid's activities, team t-shirt contest and much more!

There's still time to raise funds and qualify for incentive prizes.  Find out more here.

SUPPORT GROUP UPDATE

LSI's Support Groups are an amazing resource. Meetings are run by lupus warrior volunteers who commit themselves to leading meetings and serving their communities. 

  You can find the LSI's support groups listed here and on our calendar here.

Support Group Celebration

Support groups are an important opportunity to share your experiences with others in the lupus community and build your lupus network. 

Last weekend, Mari's Lupus Spoons Support Group celebrated 5 years!  Thank you Mari and all of LSI's support group leaders!

LUPUS CHARITY RUNNERS

Join Lupus Charity Runners for the 
2024 Bank of America Chicago Marathon

If you have your own spot in the Chicago Marathon, join us!

All of our RUNNERS receive the following benefits:

  • Training to help you complete the Bank of America Chicago Marathon safely!
  • 2 tickets to the pre-marathon pasta party!  
  • LSI Water Bottle + goodies! 
  • Lupus Charity Runner singlet! 
  • Additional fundraising incentives for exceeding your goal! 
  • Personalized fundraising webpage to help you reach your fundraising goal!
  • LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
  • Exhilaration of doing good for others while doing well for yourself! 

50TH ANNIVERSARY CELEBRATION

New memories are being made every day!  Join us and make memories of your own.

Share your photos, memories and congratulations!  We're celebrating our 50th anniversary and we want to hear from YOU!  Share your stories, photos or just congratulations here or post to social media using #LSI50!

Visit our website here and share!

RESEARCH OPPORTUNITIES

Fatigue & Lupus

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue?  Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).  

MORE

Lupus Clinical Trial Opportunity

If you have lupus, you may qualify.  
• Do you have active lupus that is not responding to your current medications?
• Are you between the ages of 18-65?
If so, you may be eligible to participate in a clinical trial testing if a new type of cellular therapy is effective and safe in treating active lupus.

MORE

 

312-542-0002 | info@lupusil.org 
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