RUSH Lupus Clinic & LSI Patient Education Event!

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October 7, 2020

A Letter from the President

I hope this email finds you well and safe during the ongoing COVID-19 crisis.

Get ready for the last educational event of 2020! The 4th annual Rush Lupus Clinic & LSI Patient Education event is coming up on Saturday, December 5, 2020. The event is virtual this year but otherwise the format is the same. We have listed the topics below. We hope you can join us! Registration is FREE and required.

LSI is only able to provide educational events for FREE thanks to the generosity of YOU! If you donated to LSI or participated in the Virtual Lupus Walk, then YOU are making these activities possible!

Donate to the LSI

The Virtual Lupus Walks have come to a close but we have some great videos we prepared for the day. You can take a look at all of them on our YouTube channel here or check out some of the videos below.

COVID-19 Question? Ask it here!

Together we make a difference.

Mary

EDUCATIONAL EVENTS

Rush Lupus Clinic & LSI Educational Event

December 5, 2020 | 9:30AM - 1:30PM | Virtual

TOPICS

Getting to Know COVID 19 from a Socially Safe Distance
presented by: Dr. Yoona Rhee and Dr. Sobia Hassan
Osteoporosis & Lupus
Presented by: Dr. Sonali Khandelwal
Healthy Eating Including Supplements and Lupus
Presented by: Dr. Shilpa Arora
Rush Lupus Clinic Panel Discussion

See the FULL AGENDA here.

LaShon Gurrola, RN, BSN

LSI Support Group Leader Served on Educational Panel

RUSH Support Group Leader LaShon Gurrola, RN, BSN, is a featured presenter for the Seeing Invisible Disabilities at Work educational event!

Thank you, LaShon, for all you do for the lupus community and beyond!

For more on this free event see the flyer here.

VIRTUAL LUPUS WALK - VIDEOS

Why Walk? Watch Mari's Story!

Why walk? Watch Bill & Patti's story!

VIRTUAL BANK OF AMERICA CHICAGO MARATHON

Celebrate the Bank of America Chicago Marathon

This year, the spirit and celebration of race week is brought to you VIRTUALLY!

Join the free 2020 Bank of America Chicago Marathon Virtual Experience starting on Monday, October 5 and culminating on Sunday, October 11, what would have been the 43rd running of the event.

Registration is FREE and distances start at 1-mile! Find out more here and then set up a fundraising page here.

Click here for more information

The Arthritis & Rheumatic Disease COVID-19 study seeks to understand the concerns and behaviors of patients with autoimmune, rheumatic, and related conditions during the COVID-19 pandemic. Surveys over time will ask patients’ about their respiratory illness symptoms, experiences of COVID-19 testing, modified doctor visits using telehealth, concerns and choices regarding immunosuppressive therapy, and preferred sources of information about COVID-19.

COVID-19 RESOURCES & UPDATES

The LSI has led the lupus community through the COVID-19 crisis by providing expert educational information and providing factual information, including hosting 3 COVID-19 & the Lupus Community Web meetings with leading lupus doctors. You can watch the educational event below and the COVID-19 webpage here.

Click the image to access the Web Meeting with Dr. Rosalind Ramsey-Goldman

Click the image to access the Web Meeting with Dr. Meenakshi Jolly

Click the image to access the Web Meeting with Dr. Robert Katz

RESEARCH OPPORTUNITIES

Fatigue & Lupus Study

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue? Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).

STUDY OF OMEGA-3 REPLACEMENT WITH KRILL OIL IN TREATMENT OF SYSTEMIC LUPUS ERYTHEMATOSUS

The study is a 24 week randomized, double-blind controlled multicenter study followed by an open label extension treatment for another 24 weeks. The purpose of this study is to determine whether the correction of the omega-3 deficiency may reduce disease activity in SLE patients.