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Call your doctor:  If you think you have been exposed to COVID-19 and develop a fever and symptoms, such as cough or difficulty breathing, call your healthcare provider for medical advice.

LSI COVID-19 Webpage

Latest News

April 3, 2020

Dear Friend,

I hope this email finds you well and safe.

Thanks to Dr. Ramsey Goldman and everyone for tuning in to our COVID-19 & the Lupus Community web meeting last night.  

The event was recorded and you can view it here.

Dr. Ramsey Goldman was kind enough to share links for wellness and exercise.  (click the link for access)  It's important to note that you should never start a new exercise program without discussing it with your doctor.

If you have additional questions, please forward those to me.  Stay tuned for additional lupus community opportunities.

If you have any information that may be helpful to others in the lupus community, please send it to me at  

Please contact us with your questions and concerns.  We are here to give you the most up to date information.

Together we'll get through this.  Together we make a difference.

Mary Dollear, President, Lupus Society of Illinois 

Contact Information

Mary Dollear,, (312) 648-6053
Charles Brummell,, (312) 542-0007
Taurean Jackson,, (312) 542-0004


COVID-19 & Lupus Web Meeting with Dr. Rosalind Ramsey Goldman

Handout: Wellness
Handout: Exercise

We are getting fewer questions about obtaining refills for hydroxychloroquine or Plaquenil. I wanted to keep the information easily accessible for those who are still having trouble:

We have 2 primary suggestions:

  1. Start your refill process early.  Your pharmacy may need to contact other pharmacies to complete your order.
  2. Don't take no for an answer.  Ask the pharmacist to order drugs from another store, find another pharmacy chain that will fill the prescription, find out when the pharmacy gets another shipment in, etc. (see the example below). 

Unfortunately there is not one pharmacy we can recommend that has the drug.  Here's what we know about the major pharmacies to check:

  • Costco 
  • Walgreens is filling refills and individuals with new prescriptions can get only 14 days.
  • CVS 
  • Osco

The feedback I'm getting is that pharmacies are prioritizing refills and turning new prescriptions away.

COVID-19 Global Rheumatology Alliance
This registry is for healthcare providers to enter data about their rheumatology patients with COVID-19 infections. It is hosted on the REDCap survey platform at UCSF.

Quick Links

These sites provide reliable information on COVID-19- - Click the image to be directed to the website.
If you have questions, please contact us at 312-542-0002 or

Links to Factual Information

Spanish Language Resources


Social Distancing Opportunities



Us In Lupus has resources for the Lupus Community

GSK's resources for the lupus community

Medicare Coronavirus Information

Medicare expands telehealth for Coronavirus

Get the latest on Coronavirus information from the CDC

Read the Illinois Executive Order on COVID-19

Read Dr. Robert Katz's article on Lupus & COVID-19

Illinois Department of Public Health COVID-19 information

City of Chicago COVID-19 site

ABC Channel 7 Hydroxychloroquine & Lupus

F3 Naperville Concierge Service (FREE)

Associate Board

Steppin' Out for Lupus Dinner Dance

The LSI Associate Board is hosting a fundraiser to benefit the LSI's mission!  It promises to be an eventful night with live music, educational speakers and a silent auction!

Friday, June 5, 2020 | 6:30 PM CDT  to 11:30 PM CDT

Educational Opportunities

Click image to register for this webinar

Illinois Lupus Walks

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Lupus Charity Runners

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Research Opportunities

Lupus Intervention Fatigue Trial

If you have lupus and suffer from low energy or you feel tired often, you may qualify for the Lupus Intervention Fatigue Trial (LIFT) – a study being done to test two treatment programs to help people with lupus better manage their fatigue.

For more information, download the flyer here


The study is a 24 week randomized, double-blind controlled multicenter study followed by an open label extension treatment for another 24 weeks. The purpose of this study is to determine whether the correction of the omega-3 deficiency may reduce disease activity in SLE patients.

For more information, download the flyer here.


Our Mission

LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.

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