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Call your doctor:  If you think you have been exposed to COVID-19 and develop a fever and symptoms, such as cough or difficulty breathing, call your healthcare provider for medical advice.

COVID-19 & LUPUS WEBMEETING with DR. RAMSEY GOLDMAN
Thursday, April 2, 2020 | 6pm-7pm
Registration Required
Ask your question for Dr. Ramsey Goldman here.

LSI COVID-19 Webpage

Latest News

April 2, 2020

Dear Friend,

I hope this email finds you well and safe.

There's still time to register for tonight's COVID-19 & LUPUS WEB MEETING WITH DR. ROSALIND RAMSEY GOLDMAN.  The event begins at 6pm.

Registration is required to receive the login information.

I encourage you to send me questions prior to the meeting.  we have over 100 people registered already.  If you have a question you want to make sure is answered, please send it to me at mary@lupusil.org.

We anticipate having time to ask questions during the meeting via chat.

If you have any information that may be helpful to others in the lupus community, please send it to me at mary@lupusil.org.  

Please contact us with your questions and concerns.  We are here to give you the most up to date information.

Together we'll get through this.  Together we make a difference.

Mary Dollear, President, Lupus Society of Illinois 

Contact Information

Mary Dollear, mary@lupusil.org, (312) 648-6053
Charles Brummell,
charles@lupusil.org, (312) 542-0007
Taurean Jackson,
taurean@lupusil.org, (312) 542-0004

 

COVID-19 & Lupus Web Meeting with Dr. Rosalind Ramsey Goldman

COVID-19 has unique concerns for the lupus community.  

Join us as Dr. Ramsey-Goldman, Solovy Arthritis Research Society Research Professor at Northwestern Medical answers your questions at the web meeting.

Send your questions for Dr. Rosalind Rasmey Goldman NOW to mary@lupusil.org

We are getting fewer questions about obtaining refills for hydroxychloroquine or Plaquenil. I wanted to keep the information easily accessible for those who are still having trouble:

We have 2 primary suggestions:

  1. Start your refill process early.  Your pharmacy may need to contact other pharmacies to complete your order.
  2. Don't take no for an answer.  Ask the pharmacist to order drugs from another store, find another pharmacy chain that will fill the prescription, find out when the pharmacy gets another shipment in, etc. (see the example below). 

Unfortunately there is not one pharmacy we can recommend that has the drug.  Here's what we know about the major pharmacies to check:

  • Costco 
  • Walgreens is filling refills and individuals with new prescriptions can get only 14 days.
  • CVS 
  • Osco

The feedback I'm getting is that pharmacies are prioritizing refills and turning new prescriptions away.

COVID-19 Global Rheumatology Alliance
This registry is for healthcare providers to enter data about their rheumatology patients with COVID-19 infections. It is hosted on the REDCap survey platform at UCSF.

Quick Links

These sites provide reliable information on COVID-19- - Click the image to be directed to the website.
If you have questions, please contact us at 312-542-0002 or info@lupusil.org

Links to Factual Information

Spanish Language Resources

 

Social Distancing Opportunities

 

COVID-19 & HYDROXYCHLOROQUINE

Us In Lupus has resources for the Lupus Community

GSK's resources for the lupus community

Medicare Coronavirus Information

Medicare expands telehealth for Coronavirus

Get the latest on Coronavirus information from the CDC

Read the Illinois Executive Order on COVID-19

Read Dr. Robert Katz's article on Lupus & COVID-19

Illinois Department of Public Health COVID-19 information

City of Chicago COVID-19 site

ABC Channel 7 Hydroxychloroquine & Lupus

F3 Naperville Concierge Service (FREE)

Associate Board

Steppin' Out for Lupus Dinner Dance

The LSI Associate Board is hosting a fundraiser to benefit the LSI's mission!  It promises to be an eventful night with live music, educational speakers and a silent auction!

Friday, June 5, 2020 | 6:30 PM CDT  to 11:30 PM CDT

Educational Opportunities

Click image to register for this webinar

Illinois Lupus Walks

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Lupus Charity Runners

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Research Opportunities

Lupus Intervention Fatigue Trial

If you have lupus and suffer from low energy or you feel tired often, you may qualify for the Lupus Intervention Fatigue Trial (LIFT) – a study being done to test two treatment programs to help people with lupus better manage their fatigue.

For more information, download the flyer here

STUDY OF OMEGA-3 REPLACEMENT WITH KRILL OIL IN TREATMENT OF SYSTEMIC LUPUS ERYTHEMATOSUS

The study is a 24 week randomized, double-blind controlled multicenter study followed by an open label extension treatment for another 24 weeks. The purpose of this study is to determine whether the correction of the omega-3 deficiency may reduce disease activity in SLE patients.

For more information, download the flyer here.

 

Our Mission

LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.

312-542-0002 | 800-258-7872 | info@lupusil.org
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