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Call your doctor:  If you think you have been exposed to COVID-19 and develop a fever and symptoms, such as cough or difficulty breathing, call your healthcare provider for medical advice.


Thursday, April 16, 2020 | 6pm-7pm
Registration Required

Ask your question for Dr. Jolly here.

COVID-19 Individual Peer Support
If you are interested in participating in this program or volunteering to talk to others in the lupus community, please complete the form here.

If you have additional questions, please contact

LSI COVID-19 Webpage

Latest News

April 13, 2020

Dear Friend,

I hope this email finds you well and safe.

There's a lot of information in this email.  Dr. Roberth Katz and Dr. Ben Small have written an article on COVID-19 & Lupus Updates.  

Lupus patients are still having a hard time getting their HCQ prescriptions filled.  LSI has written a petition to Governor Pritzker calling for him to place limits on dispensing chloroquine and hydroxychloroquine to ensure lupus patients receive medicine proven effective in the battle against the disease.

We encourage you to take a look at the petition and sign on here.  You can also share your story in support of the petition here.

Don't forget to get your questions for Dr. Jolly's COVID-19 & Lupus Community Web meeting to and register for the web meeting.

Social distancing may be effective but it also causes feelings of isolation. To combat that in the lupus community, LSI has expanded our Individual Peer Support activity. If you are interested in talking with someone in the lupus community through phone or email, please complete the survey at the bottom of the page here.  We'll be working on matching people as soon as possible.

We have another COVID-19 and the Lupus Community web meeting scheduled for April 16th.  Dr. Jolly will be the featured presenter.  registration is required here.

If you have any information that may be helpful to others in the lupus community, please send it to me at  

Please contact us with your questions and concerns.  We are here to give you reliable, timely information.

Together we'll get through this.  Together we make a difference.

Mary Dollear, President, Lupus Society of Illinois 

Contact Information

Mary Dollear,, (312) 648-6053
Charles Brummell,, (312) 542-0007
Taurean Jackson,, (312) 542-0004

Lupus and CoVID-19.  An Update
Robert S. Katz, MD and Ben J. Small, MD

Many lupus patients are concerned about how they would handle COVID-19 if they contracted the virus. The answer depends on the patient’s age and the severity of the patient's underlying lupus. 



Sign! For HCQ to Lupus Patients First

As a result of the anecdotal evidence that chloroquine and hydroxychloroquine benefit in the treatment of COVID-19, lupus patients, whose lives depend on these drugs, are not able to get prescriptions filled.

Lupus patients are on a regimen of medicines to keep life-threatening flares (active disease) at bay.  By upsetting the treatment regimen, they jeopardize their health.


COVID-19 Individual Peer Support

LSI is expanding our Individual Peer Support to assist during this crisis.

If you are interested in participating in this program or volunteering to talk to others in the lupus community, please complete the form here.

We ask personal information to help match participants and volunteers.  We will not share your information with anyone without getting approval from you.
If you have additional questions, please contact

COVID-19 & Lupus Web Meeting with Dr. Rosalind Ramsey Goldman

Handout: Wellness
Handout: Exercise

Updates & Additional Questions since the Web Meeting on 4/2/20

Updated information is the change in CDC recommendations to use a mask.  There was more talk about just talking as a way that the virus might spread.

Still the most important things to do are:

  • Social (physical distancing)-6 feet rule;
  • frequent hand washing;
  • also wash high touch areas;
  • stay home as much as possible
  • Face masks prevent you from spreading the virus especially early on when you might be asymptomatic, but face masks do not prevent you from getting it so please do the important health care measures

Please take care of yourselves: refer to the wellness links provided earlier

This is hard to do, but necessary to take care of ourselves



Q: What are some immediate things we can do or add to our diet to give our immune system an extra boost?  (i.e. foods to eat, vitamins to take, fruits to eat.)

A: I am not aware of an immune boosting diet for lupus.  However, we recommend a well balanced diet with fruits and vegetables, whole grains, lean protein, and if you don’t eat dairy or green vegetables and avoid the sun you may want to take a vitamin D supplement.  Avoid processed foods and limit consumption of sugar sweetened beverages and desserts.  I know there are “immune boosting” diets online or recommended by some practitioners.   I think if the recommendations are similar to what I stated at the beginning of this paragraph.

Q: Would plasma from recovered patients be more effective than the vaccine for SLE patients?

A: The efficacy of plasma infusions for COVID-19 is experimental.  This strategy has been tried for other infections and it does not always work.  Therefore, it should be done under supervision either in the hospital or part of a clinical trial.  Once we have scientific evidence for how or if to use this treatment, we will be able to provide more specific guidance.

COVID-19 Global Rheumatology Alliance
This registry is for healthcare providers to enter data about their rheumatology patients with COVID-19 infections. It is hosted on the REDCap survey platform at UCSF.

Quick Links

These sites provide reliable information on COVID-19- - Click the image to be directed to the website.
If you have questions, please contact us at 312-542-0002 or

Links to Factual Information

Spanish Language Resources


Social Distancing Opportunities



Cook County Department of Pubic Health's Covid-19 Resources

Us In Lupus has resources for the Lupus Community

GSK's resources for the lupus community

Medicare Coronavirus Information

Medicare expands telehealth for Coronavirus

Get the latest on Coronavirus information from the CDC

Read the Illinois Executive Order on COVID-19

Read Dr. Robert Katz's article on Lupus & COVID-19

Illinois Department of Public Health COVID-19 information

City of Chicago COVID-19 site

ABC Channel 7 Hydroxychloroquine & Lupus

F3 Naperville Concierge Service (FREE)

Associate Board

Steppin' Out for Lupus Dinner Dance

The LSI Associate Board is hosting a fundraiser to benefit the LSI's mission!  It promises to be an eventful night with live music, educational speakers and a silent auction!

Friday, June 5, 2020 | 6:30 PM CDT  to 11:30 PM CDT

Educational Opportunities

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Illinois Lupus Walks

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Lupus Charity Runners

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Research Opportunities

Lupus Intervention Fatigue Trial

If you have lupus and suffer from low energy or you feel tired often, you may qualify for the Lupus Intervention Fatigue Trial (LIFT) – a study being done to test two treatment programs to help people with lupus better manage their fatigue.

For more information, download the flyer here


The study is a 24 week randomized, double-blind controlled multicenter study followed by an open label extension treatment for another 24 weeks. The purpose of this study is to determine whether the correction of the omega-3 deficiency may reduce disease activity in SLE patients.

For more information, download the flyer here.


Our Mission

LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.

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