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Call your doctor:  If you think you have been exposed to COVID-19 and develop a fever and symptoms, such as cough or difficulty breathing, call your healthcare provider for medical advice.

Thursday, April 2, 2020 | 6pm-7pm
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LSI COVID-19 Webpage

Latest News

March 26, 2020

Dear Friend,

I hope this email finds you well.

The question today is still: how do I get my hydroxychloroquine or Plaquenil refilled?

We have 2 primary suggestions:

  1. Start your refill process early.  Your pharmacy may need to contact other pharmacies to complete your order.
  2. Don't take no for an answer.  Ask the pharmacist to order drugs from another store, find another pharmacy chain that will fill the prescription, find out when the pharmacy gets another shipment in, etc. (see the example below). 

Unfortunately there is not one pharmacy we can recommend that has the drug.  Here's what we know about the major pharmacies to check:

  • Costco 
  • Walgreens is filling refills and individuals with new prescriptions can get only 14 days.
  • CVS 
  • Osco

The feedback I'm getting is that pharmacies are prioritizing refills and turning new prescriptions away.

Advocating for yourself is still advised.

I heard this from an outstanding volunteer:

Wanted to give you an update on getting his prescription filled. CVS is currently only filling hydroxychloroquine to customers who need it. Since he has been on it for years we didn’t have any problem getting his 3 month prescription filled. However it took 3 CVS to find it. The pharmacist said they are really watching this now. Cvs was very helpful on finding it for us too.

Advocating for yourself is not easy - but it is effective.  I've gotten reports from several individuals in the lupus community who have been able to get their refills. 

In this time of confusion and fear, we also have examples of heroic behavior.  I heard from Kenny, one of our volunteers, who is a part of a F3 in Naperville and sent me this:

If you are local and need or know someone who needs assistance, please don’t hesitate to contact us at (331-444-2523), signup on our website ( or email at to submit a request for assistance.  Once we receive your request, we will contact you to coordinate on the specifics.  

Thanks to Kenny for his service and for sharing this opportunity with the lupus community. 

If you have any information that may be helpful to others in the lupus community, please send it to me at  

Please contact us with your questions and concerns.  We are here to give you the most up to date information.

Together we'll get through this.  Together we make a difference.

Mary Dollear, President, Lupus Society of Illinois 

Contact Information

Mary Dollear,, (312) 648-6053
Charles Brummell,, (312) 542-0007
Taurean Jackson,, (312) 542-0004


COVID-19 & Lupus Web Meeting with Dr. Rosalind Ramsey Goldman

COVID-19 has unique concerns for the lupus community.  

Join us as Dr. Ramsey-Goldman, Solovy Arthritis Research Society Research Professor at Northwestern Medical answers your questions at the web meeting.

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These sites provide reliable information on COVID-19- - Click the image to be directed to the website.
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Links to Factual Information

Spanish Language Resources


Social Distancing Opportunities



Us In Lupus has resources for the Lupus Community

GSK's resources for the lupus community

Medicare Coronavirus Information

Medicare expands telehealth for Coronavirus

Get the latest on Coronavirus information from the CDC

Read the Illinois Executive Order on COVID-19

Read Dr. Robert Katz's article on Lupus & COVID-19

Illinois Department of Public Health COVID-19 information

City of Chicago COVID-19 site

ABC Channel 7 Hydroxychloroquine & Lupus

F3 Naperville Concierge Service (FREE)

Associate Board

Steppin' Out for Lupus Dinner Dance

The LSI Associate Board is hosting a fundraiser to benefit the LSI's mission!  It promises to be an eventful night with live music, educational speakers and a silent auction!

Friday, June 5, 2020 | 6:30 PM CDT  to 11:30 PM CDT

Educational Opportunities

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Illinois Lupus Walks

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Lupus Charity Runners

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Research Opportunities

Lupus Intervention Fatigue Trial

If you have lupus and suffer from low energy or you feel tired often, you may qualify for the Lupus Intervention Fatigue Trial (LIFT) – a study being done to test two treatment programs to help people with lupus better manage their fatigue.

For more information, download the flyer here


The study is a 24 week randomized, double-blind controlled multicenter study followed by an open label extension treatment for another 24 weeks. The purpose of this study is to determine whether the correction of the omega-3 deficiency may reduce disease activity in SLE patients.

For more information, download the flyer here.


Our Mission

LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.

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