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Call your doctor:  If you think you have been exposed to COVID-19 and develop a fever and symptoms, such as cough or difficulty breathing, call your healthcare provider for medical advice.

LSI COVID-19 Webpage

Latest News

March 24, 2020

Dear Friend,

I hope this email finds you well.

The question today: how do I get my hydroxychloroquine or Plaquenil refilled?

We have 2 primary suggestions:

  1. Start your refill process early.  Your pharmacy may need to contact other pharmacies to complete your order.
  2. Don't take no for an answer.  Ask the pharmacist to order drugs from another store, find another pharmacy chain that will fill the prescription, find out when the pharmacy gets another shipment in, etc. (see the example below). 

Unfortunately there is not one pharmacy we can recommend that has the drug.  Here's what we know about the major pharmacies:

  • Costco does have the drug
  • Walgreens is filling refills and individuals with new prescriptions can get only 14 days.
  • CVS has no policy 
  • Osco is reportedly getting a new shipment today

The feedback I'm getting is that pharmacies are prioritizing refills.  

Advocating for yourself is not easy - but it is effective.  I've gotten reports from several individuals in the lupus community who have been able to get their refills.  Here's an excellent example of advocating for yourself:

I received this email from the amazing LaShon Gurrola, RUSH Support Group Leader:

I was able to get a 3 month supply that I can pick up March 31st . I spoke with the pharmacist and explained about my lupus and potential for flare, but they are familiar with my advocacy as when I once had to get Mycophenolate they told me their stock was for transplant patients and initially did not want to release to me. It took about 8 hours but I finally got the medication, but it took calling the insurance company and insurance plan administrator, and police- as I refused to leave w/o the medication. We must advocate for ourselves no matter what!

If you have any information that may be helpful to others in the lupus community, please send it to me at  

Please contact us with your questions and concerns.  We are here to give you the most up to date information.

Together we'll get through this.  Together we make a difference.

Mary Dollear, President, Lupus Society of Illinois 

Contact Information

Mary Dollear,, (312) 648-6053
Charles Brummell,, (312) 542-0007
Taurean Jackson,, (312) 542-0004

Quick Links

These sites provide reliable information on COVID-19- - Click the image to be directed to the website.
If you have questions, please contact us at 312-542-0002 or

Links to Factual Information

Social Distancing Opportunities



Us In Lupus has resources for the Lupus Community

GSK's resources for the lupus community

Medicare Coronavirus Information

Medicare expands telehealth for Coronavirus

Get the latest on Coronavirus information from the CDC

Read the Illinois Executive Order on COVID-19

Read Dr. Robert Katz's article on Lupus & COVID-19

Illinois Department of Public Health COVID-19 information

City of Chicago COVID-19 site

ABC Channel 7 Hydroxychloroquine & Lupus


Associate Board

Steppin' Out for Lupus Dinner Dance

The LSI Associate Board is hosting a fundraiser to benefit the LSI's mission!  It promises to be an eventful night with live music, educational speakers and a silent auction!

Friday, June 5, 2020 | 6:30 PM CDT  to 11:30 PM CDT

Educational Opportunities

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Illinois Lupus Walks

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Lupus Charity Runners

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Research Opportunities

Lupus Intervention Fatigue Trial

If you have lupus and suffer from low energy or you feel tired often, you may qualify for the Lupus Intervention Fatigue Trial (LIFT) – a study being done to test two treatment programs to help people with lupus better manage their fatigue.

For more information, download the flyer here


The study is a 24 week randomized, double-blind controlled multicenter study followed by an open label extension treatment for another 24 weeks. The purpose of this study is to determine whether the correction of the omega-3 deficiency may reduce disease activity in SLE patients.

For more information, download the flyer here.


Our Mission

LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.

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