|
|
|
A Letter from the President I hope this email finds you well and safe. It's a year later this month that the COVID-19 quarantine began. There are now vaccines available. If you weren't able to catch our webinar on February 23rd, you can still watch the entire "Understanding Lupus and the COVID-19 Vaccines" here. |
| | We still have guaranteed spots for the upcoming Bank of America Shamrock Shuffle and Chicago Marathon. You can see below for more information or email mary@lupusil.org. Both of these events are fun and inspiring ways to increase awareness about lupus. Our teams always consist of warm and wonderful people on a mission to increase lupus awareness and raise funds for the LSI. We also have sad news to share. Meaghan Fox was a member of the LSI's Assoicate Board, a former Lupus Walk Ambassador and lupus champion. We are sorry to report that Meagan passed away last month at the tender age of 23. Find out more about Meaghan and share your memories about her here. In her short life, Meaghan made lupus awareness a priority. We were honored to know her and we continue working toward our common goal. Together we make a difference. Mary Dollear |
|
|
| FDA Approves Aurinia Pharmaceuticals’ LUPKYNIS™ (voclosporin) for Adult Patients with Active Lupus Nephritis |
|  | LUPKYNIS is the first FDA-approved oral therapy for lupus nephritis (LN), a condition that causes irreversible kidney damage and increases the risk of kidney failure, cardiac events, and death - - LUPKYNIS demonstrated significantly improved renal response rates compared to typical standard-of-care (SoC) in clinical trials FULL ARTICLE |
| |
|
|
|
TO LIVE WITH LUPUS,
WE NEED TO KNOW ABOUT LUPUS
March 23, 2021 - 6:00pm - Web Meeting This presentation will provide information anyone with lupus should know. This overview of lupus begins with the history of lupus and continues to include information on symptoms, treatments, medications and labs. This presentation is for anyone with lupus and those who care about them. Registration required for web meeting access. |
| |
|
|
Understanding the Lupus & COVID-19 Vaccine
Watch the presentation in full! Access the presentations slide deck here. |
| |
|
|
|
|
 | Join LRA’s Advocate for Lupus Research Week
March 15 - 19, 2021! Your voices will be heard as loud and clear as ever, albeit virtually! Join us Monday, March 15 for our Advocate for Lupus Research meeting presented by PA Fund for Patient Advocacy at the LRA. Hear from DC experts and experienced lupus advocates on how to advocate effectively and what we need Congress to approve in the fiscal year 2022 budget to keep the lupus research momentum going. |
| |
|
|
|
 | Theta Lamdba Beta Fraternity "Deadlifts for Lupus"
March 21, 2021! Theta Lambda Beta Fraternity presents the first "Deadlifts for Lupus" Philanthropy Event in collaboration with Eager Lifestyle and the Lupus Society of Illinois! Registration is closed but sponsors and donors are welcome! Find out more below. (Must have Facebook to access the event information!) |
| |
|
|
|
 | Bank of America
Chicago Marathon LSI has your guaranteed spot! The Bank of America Chicago Marathon is back in 2021! Get your guaranteed spot for this amazing event now! LSI offers runners support every step of the way. Find out more here or call Mary at 312-648-6053. |
|
|
 | Bank of America
Shamrock Shuffle LSI has your guaranteed spot! LSI has discounted spots for our team! Join Lupus Charity Runners and you get $5 off the registration fee! Fundraising minimum is $350 - and LSI makes that easy! Find out more here or call Mary at 312-648-6053. |
|
|
|
|
COVID-19 RESOURCES & UPDATES |
| The LSI has led the lupus community through the COVID-19 crisis by providing expert educational information and providing factual information, including hosting 3 COVID-19 & the Lupus Community Web meetings with leading lupus doctors. You can watch the educational event below and the COVID-19 webpage here. |
| |
|
|
Should People with Lupus Get the COVID-19 Vaccine
By Dr. Robert Katz On December 11, 2020, the U.S. Food and Drug Administration issued the first emergency use authorization (EUA) for a vaccine for the prevention of coronavirus disease 2019 (COVID-19) |
| |
|
|
|
|
|  | Fatigue & Lupus A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability. How does someone manage fatigue? Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT). |
| |
|
|
|
|
|
|
