Friend, find out what's happening in the Illinois Lupus Community, like FREE educational events and the NEW Virtual Lupus Walk!! ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌  ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌ ‌

June 2020

A Letter from the President

Dear Friend,

I don't know about you, but I have found time to be strange in this challenging time.  I hope you are all staying safe and well as we navigate these obstacles together.

the lupus community has so much going on and i'm excited to share it with you.

First - our Virtual Lupus Walks are launched. To keep everyone as safe as possible, our live events were merged into one large Virtual Lupus Walk extravaganza!

Learning what a virtual walk is has been fun and we think you'll really enjoy the opportunities to create community in this new way.

We'll  be celebrating the Virtual Lupus Walks over the entire month of August.  We'll have fun activities throughout the month and prizes.  As a participant, you can:

Walk fast or slow, all at once, once a day, weekly or whenever you like!

Take pictures and share them with the LSI family - we'll highlight your efforts online!

Win new and awesome prizes!

Due to the generosity of Lupus Walk Participants, donors and sponsors we are able to provide outstanding educational opportunities, like the GSK Us in Lupus series and the Social Security Disability: Change and Confusion webinar on July 16th.

We hope you will be able to join us at these activities.

Together we make a difference.

Mary

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Upcoming LSI Events

June 25 | 6pm
Us in Lupus Webinar

July 9 | 6pm
Us in Lupus Webinar

July 16 | 6:30
Social Security Disability: 
Change & Confusion

August 1-31 
Virtual Lupus Walk
A month of activities celebrating the lupus community!

Educational Events

Lupus Resources
6/25 | 6:00pm

Lupus can be isolating and difficult to explain. Join us for this FREE webinar discussing the basics of lupus and the immune system. Presented by E. Aliciee Griffith, RN, BSN, BS, Patient Engagement Lead at GlaxoSmithKline. Registration required.
This presentation will benefit lupus patients and those who want to learn more about lupus.

NEW DATE!
Managing Lupus
7/9 | 6:00pm

Lupus can be isolating and difficult to explain. Join us for this FREE webinar discussing the basics of lupus and the immune system. Presented by E. Aliciee Griffith, RN, BSN, BS, Patient Engagement Lead at GlaxoSmithKline. Registration required.
This presentation will benefit lupus patients and those who want to learn more about lupus.

Social Security Disability: Change & Confusion
7/16 | 6:30pm

Lupus can be challenging for lupus patients to apply for disability.  This webinar explains the application process and how months can be shaved from the processing time.  How to communicate with bureaucracy and physicians and minimizing delays are all covered.  

Click image for more and to register

 

COVID-19 RESOURCES & UPDATES

The LSI has led the lupus community through the COVID-19 crisis by providing expert educational information and providing factual information, including hosting 3 COVID-19 & the Lupus Community Web meetings with leading lupus doctors. You can watch the educational event below and the COVID-19 webpage here.

Click the image to access the Web Meeting with Dr. Rosalind Ramsey-Goldman

Click the image to access the Web Meeting with Dr. Meenakshi Jolly

Click the image to access the Web Meeting with Dr. Robert Katz

 

Coronavirus (COVID-19) Update: FDA Revokes Emergency Use Authorization for Chloroquine and Hydroxychloroquine

 the U.S. Food and Drug Administration (FDA) revoked the emergency use authorization (EUA) that allowed for chloroquine phosphate and hydroxychloroquine sulfate donated to the Strategic National Stockpile to be used to treat certain hospitalized patients with COVID-19 when a clinical trial was unavailable, or participation in a clinical trial was not feasible. 

MORE

RESEARCH OPPORTUNITIES

Team Gayla's Gang

Fatigue & Lupus

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue?  Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).  

 

RUSH Lupus Study
STUDY OF OMEGA-3 REPLACEMENT WITH KRILL OIL IN TREATMENT OF SYSTEMIC LUPUS ERYTHEMATOSUS

The study is a 24 week randomized, double-blind controlled multicenter study followed by an open label extension treatment for another 24 weeks. The purpose of this study is to determine whether the correction of the omega-3 deficiency may reduce disease activity in SLE patients.

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312-542-0002 | info@lupusil.org 
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