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August 2023 

A Letter from the President

I hope this email finds you well and safe.

LSI started a printed newsletter - The Butterfly Effect - that will be published 3 times a year.  The newsletter will be mailed directly to members and donors and past issues will be posted when the current issue is mailed.

The Spring Edition is available online by clicking on the image or here

Our Western Suburbs Lupus Walk was August 12th and it was a beautiful day! Three hundred participants came out and raised about  $40,000 toward our mission!  Thanks to everyone who came out and helped make this such a special day.

Our Chicago Walk is shaping up to be amazing.  There's still plenty of time to register and get in on the fun.  Get your team together and make a day of it - Lincoln Park is a great place to spend a day - and the LSI is a great organization to support!

LSI is able to achieve its mission thanks to the success of the Illinois Lupus Walks.  We hope to see you on September 30th!

Make sure to read the excellent essay by Madeline Handley who provides terrific insights into making the transition to college while living with lupus.  This is the first of a series of stories.

LSI's Facebook Live series continues.  Join us for a Facebook Live event with Chicago's Lupus Walk Ambassador Viktoria Baldo.  You can also watch our past Facebook Live events here.

Also in this newsletter, see the special support group meeting coming up on September 9th, an Associate Board Meeting on September 20th, photos from two Health Fairs over the summer and a link to photos from the Western Suburbs Lupus Walk!

We are still looking for your memories!  As we celebrate our 50th Anniversary, we want to hear from you!  Take a moment to share your recollections with us online here or post it on social media using #LSI50!

In 50 years, we've come so far.  Together, we've made a difference.



Butterfly Effect Newsletter!


Western Suburbs
Lupus Walk Photos!

Click the image above for more photos from the Western Suburbs Lupus Walk!


Viktoria Baldo

Meet Chicago's Lupus Walk Ambassador
Viktoria Baldo

September 5 @ 6:00 PM - 7:00 PM

Join us for a Facebook Live event with Chicago's Lupus Walk Ambassador Viktoria Baldo. 

During this Facebook Live, Viktoria will share her lupus story. How she almost passed away and how she is thriving today. Not only has Viktoria learned to manage her lupus, she has taken this journey and shares it on social media. She has 139,000 followers on TikTok and had her wedding was featured in the New York Times. Viktoria is a recent college graduate and a newlywed. 

Viktoria has been on the Chicago walk committee for the past two years. LSI is very excited for you all to get to know this amazing women, who is doing so much in the lupus community. 


The Beginning
By Madeline Handley

Middle school is defined, for many, by transitions; I was surely no exception to this. My time during those three years included reluctant visits to my orthodontist, hours spent after school on a lacrosse field, and stressing over drama with friends and crushes, all while awaiting the next big thing: high school. In these ways, my experience was much like the other kids at my school. I was a healthy kid with a pretty normal life, who didn’t worry about much other than my social life and grades.



Watch Facebook Live Educational Events!
(Click the image to watch a recording of the presentation)

Transitioning to College as a Lupus Patient
Featuring Madeline Handley
Watch the full recording - click the image above to play

2023 Western Suburbs Lupus Walk Ambassadors Eddie & Elsa
Watch the full recording - click image above to play


New year, new Illinois Lupus Walk incentive prizes!  Check out the new items on our walk websites!

Chicago Walk & Fun Run  
Lincoln Park - September 30, 2023 
8:30am – Registration
10:00am – Walk Starts


LSI is fortunate to have active and engaged volunteers who represent us at Health Fairs!

If you are interested in volunteering, please contact Lisa at lisa@lupusil.org or call 312-542-0002

Blanco & Mari represent LSI at a Health Fair

Robertha (center) and helpers Felicia (left) and Janice (right) represent LSI at a Health Fair


Share your photos, memories and congratulations!  We're celebrating our 50th anniversary and we want to hear from YOU!  Share your stories, photos or just congratulations here!

Support Group Leader LaShon and her sorority posted their Happy 50th Anniversary Congratulations on Facebook!

Visit our website here and share!


Are you Running the
Bank of America Chicago Marathon?
Join Lupus Charity Runners!

All of our RUNNERS receive the following benefits:

Training to help you complete the Bank of America Chicago Marathon safely!
2 tickets to the pre-marathon pasta party!  
LSI Water Bottle + goodies! 
Lupus Charity Runner singlet! 
Additional fundraising incentives for exceeding your goal! 
Receive personalized fundraising webpage to help you reach your fundraising goal!
LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
Exhilaration of doing good for others while doing well for yourself! 



Next Meeting

Join the LSI's Associate Board for their next meeting on September 20th at 7pm!

Contact Lisa at lisa@lupusil.org or call 312-542-0002 for more information.



Fatigue & Lupus

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability.

How does someone manage fatigue?  Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT).  


Lupus Clinical Trial Opportunity

If you have lupus, you may qualify.  
• Do you have active lupus that is not responding to your current medications?
• Are you between the ages of 18-65?
If so, you may be eligible to participate in a clinical trial testing if a new type of cellular therapy is effective and safe in treating active lupus.



Special Support Group Meeting

This Support Group Meeting on September 9, 2023 will include a special crafting activity for in-person attendees.

This event is free. Leader Mari says, "My friend in California from Support Fibromyalgia (Melissa) is sending us all the Empower Flower. During our group we'll be showing on being more positive in life while living with so much negative."

Also, Brandi will be speaking to to the group about about being positive and to help empower the lupus community. 

The meeting is at Queen of Apostles Voss Center ay 4412 N Western Ave (2nd fl) & on zoom. People are welcomed to join us that day live in Chicago. Free parking on Western Ave & in our parking lot.

Contact lisa@lupusil.org or call 312-542-0002 for more information.


312-542-0002 | info@lupusil.org 
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