Dear Friend

Spring is in the air – which means that Lupus Awareness Month is right around the corner!

We have some exciting surprises in store for the lupus community this May.  In addition to sending out facts of the day, providing tools to help you raise awareness about lupus in your community and our annual Northern & Southern Suburbs Illinois Lupus Walks, we are introducing the 2019 Chicago Spring Half Marathon & 10K event on May 19, 2019 and Bike the Drive on May 26, 2019.  And talk about a FUN FUNdraiser, the LSI's Associate Board (formerly the Junior Board) is also hosting an event on May 2, 2019 - a Night with Jackie Fabulous!  

We even have information on a volunteer driven event: the Southern Suburbs Walk Team Gayla's Gang's annual fundraiser! The event is at Chicago Dough in New Lenox from 4:30-8:30pm. 

Whenever we talk about our programs and services, we have to discuss our fundraising activities like the Illinois Lupus Walks - because we simply couldn't provide the programs and services without the success of these events.  Besides being important fundraisers they are also awareness builders!  Many in the lupus community first hear about us from the Illinois Lupus Walks and then benefit from our free programs and services.  If you haven't been to an Illinois Lupus Walk, we hope to see you there and if you have, now's the time to register for 2019!  You can find out more here.

Send me an email with information on your event or activity and we'll post it on our Lupus Awareness Month page!

Next month we have our Lupus Update webinar with Dr. Rosalind Ramsey Goldman.  Don't forget to register for this great opportunity to hear from a lupus expert about what's new in lupus research and treatments. 

This is the last weekend to join our Bank of America Chicago Marathon team for the 2019 Lupus Charity Runners Team!  If you've ever thought about running a marathon, why not run it for us?  We have a terrific program with a team of people from around the country who want to take on the challenge of a marathon while raising awareness and funds for the lupus community.  Find out more about our program here.

We just had a team at the Bank of America Shamrock Shuffle – and this year's team included some new young runners and some of our marathon runners!  A special shout out to Kelsey and Brian for coming in from Massachusetts for the event!

And LSI is promoting Night of Beauty – an event sponsored by GSK and NARS cosmetics hosted at Sephora on April 16th.  The event includes full makeovers for a select number of lupus patients and a fun event for everyone in the lupus community!  LSI will be there along with many of our greatest support group leaders and volunteers.  Find out more about this event and register here.

We look forward to seeing you at an upcoming LSI activity!

Together we make a difference.

Mary Dollear
President

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Our Mission 

The Lupus Society of Illinois promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.

 

LSI's Delegates to Washington DC to Advocate for Lupus!

Karen Mancera Cuevas and Kanefus Walker participated in the Lupus Research Alliance's Advocacy Day in Washington DC on March 19th.  Together with other Illinois residents, Karen and Kanefus met with legislator aids about their personal experiences with lupus and to encourage legislators to sign on to the lupus caucus and support: 

  • $41.6 million for the National Institutes of Health, the largest biomedical research agency in the world
  •  $10 million for the Lupus Research Program at the Department of Defense

To find out more and to get more involved in advocacy, visit the LRA's Legislative Action Center here.

 

Lupus Update with Dr. Rosalind Ramsey Goldman

Living with lupus is challenging.  Staying up to date on lupus information —including lupus treatments—isn't easy.  

Join us as Dr. Ramsey-Goldman, Solovy Arthritis Research Society Research Professor at Northwestern Medical provides a Lupus Update.

Registration is required.  Register today!
 

 

Amazing Opportunity for the Lupus Community!  

I wanted to let you know about an exciting event happening in Chicago, IL on April 16, 2019. If you're a person living with lupus, come out to Night of Beauty, an experience created just for you and your village of supporters. Join Us in Lupus for makeup consultations, self-care tips, lupus education, and photo sharing!

RSVP today and read more event details at NightofBeautyCHI.com #UsinLupus #UsinLupusNOB
#UsinLupusCHI #LupusWarriors

 

Lupus Awareness Month

Lupus Awareness Month is the time of year when the lupus community takes time to educate their families, workplaces and neighborhoods about lupus.  Education can be as modest as sending an email to your friends and family about lupus to organizing a Lupus Awareness Day at your office.  We encourage you to get creative as you raise awareness about this often misunderstood disease.

Some events are already scheduled!

May 2, 2019 - Zanies and LSI's Associate Board's A Night with Jackie Fabulous

May 5, 2019 - Northern Suburbs Illinois Lupus Walk

May 19, 2019 - Chicago Spring Half Marathon & 10K

May 26, 2019 - Bike the Drive

June 1, 2019 - Southern Suburbs Lupus Walk

And, Southern Suburbs Walk Team Gayla's Gang has their annual Lupus Fundraiser!
May 30, 2019
4:30pm - 8:30pm
Chicago Dough in New Lenox, IL 
There will be an amazing raffle and a percent of the buffet will be donated to LSI!

 

Research Announcement: Lupus Intervention Fatigue Trial (LIFT)

If you have lupus and suffer from low energy or you feel tired often, you may qualify for the Lupus Intervention Fatigue Trial (LIFT) - a study being done to test two treatment programs to help people with lupus better manage their fatigue.

For more information, download the flyer here.

 

Lupus Charity Runners at the Bank of America Shamrock Shuffle

Congratulations to LSI's Lupus Charity Runners on participating in the Bank of America Shamrock Shuffle!  Our runners received special green Lupus Charity Runners t-shirts for using the race as an opportunity to raise awareness and funds for the LSI!  

A special thanks goes out to our youngest runners - Ayden & Brandon!

Thanks to ALL of our runners for going the extra mile - literally!

 

Zanies and the LSI Associate Board Present a Night with Jackie Fabulous!!!

Join the LSI's Associate Board for a night of laughs with Jackie Fabulous!  Tickets are $25 and requires a 2 item purchase at Zanies (food or drink).  Must be 21 years or older.

Don't miss this opportunity to meet and enjoy a great show with great people from the lupus community!

When:  Thursday, May 2, 2019  |  8:00 PM CDT - 10:00 PM CDT

Find out more and purchase tickets here.

 

Check it Off Your Bucket List!
Claim your GUARANTEED SPOT in the 2019 Bank of America Chicago Marathon!

LSI has guaranteed spots in the 2019 Chicago Marathon. We offer benefits to help you achieve your goal while raising awareness and funds for the LSI.

If you're going to run 26.2 miles, why not do it with the support of the LUPUS COMMUNITY!

Find out more and claim your spot here.

 

Illinois Lupus Walks are OPEN!

Join us for the 2019 Illinois Lupus Walks!  The lupus community is looking forward to seeing you there!

 

New This Year!

Join the inaugural Lupus Charity Runners team in the Chicago Half Marathon!  

Find out more or sign up today!

 

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Lupus Society of Illinois
411 S Wells St, Ste 503 | Chicago, Illinois 60607
3125420002 | mary@lupusil.org

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